Stories Archives • World Duchenne

Showing all 30 results

Welcome aboard, DGM Germany

DGM Germany joins the World Duchenne Organization as member. We wish a warm welcome to the Deutsche Gesellschaft für Muskelkranke e.V.

World Duchenne Organization Welcomes Graciela Méndez as New Board Member

World Duchenne Organization is glad to announce Graciela Méndez (Mexico) as its newest board member. She will succeed Santiago Ordoñez.

United Nations Officially Designates September 7 as World Duchenne Awareness Day

The United Nations has marked a momentous milestone for the global rare disease community by officially designating September 7th as…

ALDIM Joining World Duchenne Organization

We are happy to announce that the Leonesa Association for Muscular Dystrophy (ALDIM) is joining World Duchenne Organization (WDO). By…

World Duchenne Awareness Day 2023: Breaking Barriers Globally

World Duchenne Awareness Day 2023 marked a great success in our mission to advocate for people living with Duchenne and…

七色堇 (Seven Petal Pansy): China Joins World Duchenne Organization

We are excited to announce that Seven Petal Pansy (China) has become a full member of the World Duchenne Organization.

Seven Seas: Duchenne Japan now WDO Aspiring Member

Seven Seas, the Duchenne patient advocacy group from Japan has joined the World Duchenne Organization (WDO) as Aspiring Member.

World Duchenne Awareness Day 2023 theme: Breaking Barriers

World Duchenne Awareness Day 2023 Theme – Duchenne: Breaking Barriers

The World Duchenne Awareness Day 2023 theme is 'Duchenne: Breaking Barriers' promoting social inclusion for people with dystrophinopathies.

BharathMD Foundation joins World Duchenne Organization

BharathMD Foundation (India) joins World Duchenne Organization

BharathMD Foundation, a newly founded parent advocacy organization in India, has recently become a member of the World Duchenne Organization.

Family, Friends and Duchenne joins World Duchenne Organization

Family, Friends and Duchenne joins World Duchenne Organization. The group aims to address common themes that people with Duchenne face.

World Duchenne Organization honored for outstanding achievement in rare diseases

World Duchenne Organization is honored for outstanding achievement in rare diseases at the MENA Organization for Rare Diseases Conference

DMD Emergency Program activated for Turkey/Syria earthquake

The DMD Emergency Program has been activated for Turkey and Syria, providing resources and support to the families after the earthquake.

Picture of people with Duchenne Muscular Dystrophy and their families during a meeting.

Duchenne Hungary joins World Duchenne Organization

Duchenne Hungary is supporting children and families with Duchenne and Becker MD. Now, they are Member of the World Duchenne Organization.

2022 Wrap-up: Activities of World Duchenne Organization

Elizabeth Vroom looks back on 2022, listing all activities of the World Duchenne Organization, and carefully draws a rough outline for 2023.

Duchenne Vietnam first WDO Aspiring Member

Duchenne Vietnam successfully applied for the WDO Aspiring Membership, joining the World Duchenne Organization.

Live Feed: Emergency situation in Ukraine for Duchenne and Becker MD families

The World Duchenne Organization is close to families affected by Duchenne and Becker MD in Ukraine. We urge Ukrainian families to contact us.

On the run with the Duchenne

Ivanna, Max and Mark were fleeing to Poland. They found a welcome in Prague, thanks to global help of Duchenne patient organizations.

The strength of the fragile people: Duchenne and Becker MD in Ukraine during the war

The World Duchenne Organization activated the DMD Emergency program for the victims of the Ukrainian conflict.

2021 Wrap-up: Reflections, Activities, Moving Forward

The year 2022 is greeting us, bursting with new opportunities. Before waving goodbye to 2021, Elizabeth Vroom is reflecting back…

PPMD India joins World Duchenne Organization

The Akari Foundation for Duchenne muscular dystrophy affected in Texas, United States

The Akari Foundation joins World Duchenne Organization

The Akari Organization supports low-income Hispanic families with people affected by Duchenne in San Antonio, Texas.

Adam Peska to win gold medal in Boccia at Tokyo Paralympics

Adam Peska from the Czech Republic won a gold medal in individual boccia BC3 at the 2020 Summer Paralympics in Tokyo, Japan.

Philip Jönsson first person with Duchenne MD to win gold at Paralympics

Today, Philip Jönsson won the gold medal in the mixed 10m air rifle standing SH2 event at the 2020 Summer Paralympics held in Tokyo, Japan.

DMD Care Association Romania joins World Duchenne Organization

DMD Care Association provides support for children and families affected by Duchenne in Romania. They are World Duchenne Organization member.

Duchenne Family Support Group joins WDO

In 1987, a small group of parents regularly met at their clinic appointments. Now, they join the global Duchenne family support community.

Duchenne Australia joins World Duchenne Organization

Australia's youngest Duchenne Muscular Dystrophy organization was launched on World Duchenne Awareness Day 2020. Now, they joined the World Duchenne Organization.

The experience as mother of a Duchenne adult who recently turned 30

Elizabeth Vroom shares her experience as mother of a Duchenne young man who recently celebrated his 30th birthday. Elizabeth Vroom…

Enlace Mexico: WDO’s 45th Member Organization

Enlace Distrofia Muscular Duchenne Becker is the only non-profit organization providing optimal medical, emotional and psychological care for DMD/BMD patients…

WDO welcomes 44th member patient organization: DMD Aileleri

DMD Aileleri Derneği (meaning DMD Families Association in Turkish) started Turkey by families whose children are diagnosed with Duchenne and…

New Russian patient organization 'CF Gordey' joins WDO

CF Gordey is a family created patient advocacy organization who is working with families, healthcare, society and the state to…

Go back to all news

Sections

Results

News

Welcome aboard, DGM Germany

World Duchenne Organization Welcomes Graciela Méndez as New Board Member

United Nations Officially Designates September 7 as World Duchenne Awareness Day

ALDIM Joining World Duchenne Organization

World Duchenne Awareness Day 2023: Breaking Barriers Globally

七色堇 (Seven Petal Pansy): China Joins World Duchenne Organization

Seven Seas: Duchenne Japan now WDO Aspiring Member

World Duchenne Awareness Day 2023 Theme – Duchenne: Breaking Barriers

BharathMD Foundation (India) joins World Duchenne Organization

Family, Friends and Duchenne joins World Duchenne Organization

World Duchenne Organization honored for outstanding achievement in rare diseases

DMD Emergency Program activated for Turkey/Syria earthquake

Duchenne Hungary joins World Duchenne Organization

2022 Wrap-up: Activities of World Duchenne Organization

Duchenne Vietnam first WDO Aspiring Member

Live Feed: Emergency situation in Ukraine for Duchenne and Becker MD families

On the run with the Duchenne

The strength of the fragile people: Duchenne and Becker MD in Ukraine during the war

2021 Wrap-up: Reflections, Activities, Moving Forward

PPMD India joins World Duchenne Organization

The Akari Foundation joins World Duchenne Organization

Adam Peska to win gold medal in Boccia at Tokyo Paralympics

Philip Jönsson first person with Duchenne MD to win gold at Paralympics

DMD Care Association Romania joins World Duchenne Organization

Duchenne Family Support Group joins WDO

Duchenne Australia joins World Duchenne Organization

The experience as mother of a Duchenne adult who recently turned 30

Enlace Mexico: WDO’s 45th Member Organization

WDO welcomes 44th member patient organization: DMD Aileleri

New Russian patient organization 'CF Gordey' joins WDO

Givinostat – How does it work and what do we know so far for Duchenne?

White Paper Released: Newborn Screening for Duchenne Muscular Dystrophy – The Time is Now

World Duchenne Awareness Day 2024 granted patronage by European Parliament