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The World Duchenne Awareness Day 2023 theme is 'Duchenne: Breaking Barriers' promoting social inclusion for people with dystrophinopathies.
BharathMD Foundation (India) joins World Duchenne Organization
BharathMD Foundation, a newly founded parent advocacy organization in India, has recently become a member of the World Duchenne Organization.
Family, Friends and Duchenne joins World Duchenne Organization
Family, Friends and Duchenne joins World Duchenne Organization. The group aims to address common themes that people with Duchenne face.
World Duchenne Organization honored for outstanding achievement in rare diseases
World Duchenne Organization is honored for outstanding achievement in rare diseases at the MENA Organization for Rare Diseases Conference
DMD Emergency Program activated for Turkey/Syria earthquake
The DMD Emergency Program has been activated for Turkey and Syria, providing resources and support to the families after the earthquake.
Duchenne Hungary joins World Duchenne Organization
Duchenne Hungary is supporting children and families with Duchenne and Becker MD. Now, they are Member of the World Duchenne Organization.
2022 Wrap-up: Activities of World Duchenne Organization
Elizabeth Vroom looks back on 2022, listing all activities of the World Duchenne Organization, and carefully draws a rough outline for 2023.
Duchenne Vietnam first WDO Aspiring Member
Duchenne Vietnam successfully applied for the WDO Aspiring Membership, joining the World Duchenne Organization.
Live Feed: Emergency situation in Ukraine for Duchenne and Becker MD families
The World Duchenne Organization is close to families affected by Duchenne and Becker MD in Ukraine. We urge Ukrainian families to contact us.
On the run with the Duchenne
Ivanna, Max and Mark were fleeing to Poland. They found a welcome in Prague, thanks to global help of Duchenne patient organizations.
The strength of the fragile people: Duchenne and Becker MD in Ukraine during the war
The World Duchenne Organization activated the DMD Emergency program for the victims of the Ukrainian conflict.
2021 Wrap-up: Reflections, Activities, Moving Forward
The year 2022 is greeting us, bursting with new opportunities. Before waving goodbye to 2021, Elizabeth Vroom is reflecting back…
PPMD India joins World Duchenne Organization
PPMD India joins World Duchenne Organization
The Akari Foundation joins World Duchenne Organization
The Akari Organization supports low-income Hispanic families with people affected by Duchenne in San Antonio, Texas.
Adam Peska to win gold medal in Boccia at Tokyo Paralympics
Adam Peska from the Czech Republic won a gold medal in individual boccia BC3 at the 2020 Summer Paralympics in Tokyo, Japan.
Philip Jönsson first person with Duchenne MD to win gold at Paralympics
Today, Philip Jönsson won the gold medal in the mixed 10m air rifle standing SH2 event at the 2020 Summer Paralympics held in Tokyo, Japan.
DMD Care Association Romania joins World Duchenne Organization
DMD Care Association provides support for children and families affected by Duchenne in Romania. They are World Duchenne Organization member.
Duchenne Family Support Group joins WDO
In 1987, a small group of parents regularly met at their clinic appointments. Now, they join the global Duchenne family support community.
Duchenne Australia joins World Duchenne Organization
Australia's youngest Duchenne Muscular Dystrophy organization was launched on World Duchenne Awareness Day 2020. Now, they joined the World Duchenne Organization.
The experience as mother of a Duchenne adult who recently turned 30
Elizabeth Vroom shares her experience as mother of a Duchenne young man who recently celebrated his 30th birthday. Elizabeth Vroom…
Enlace Mexico: WDO’s 45th Member Organization
Enlace Distrofia Muscular Duchenne Becker is the only non-profit organization providing optimal medical, emotional and psychological care for DMD/BMD patients…
WDO welcomes 44th member patient organization: DMD Aileleri
DMD Aileleri Derneği (meaning DMD Families Association in Turkish) started Turkey by families whose children are diagnosed with Duchenne and…
New Russian patient organization 'CF Gordey' joins WDO
CF Gordey is a family created patient advocacy organization who is working with families, healthcare, society and the state to…
Finland establishes first Duchenne patient organization
On Benjamin's first birthday, the Finell family received a phone call from the hospital that not only Benjamin but also…
First reported case of COVID-19 in person affected by Duchenne
Last week, the news has reached us that a young Duchenne adult from Belgium has been infected with COVID-19. The…
La Force DMD joins the World Duchenne Organization
Since the official start of the World Duchenne Organization in 2007 (then named United Parent Projects Muscular Dystrophy), the number…