Stories Archives • World Duchenne

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Live Feed: Emergency situation in Ukraine for Duchenne and Becker MD families

The World Duchenne Organization is close to families affected by Duchenne and Becker MD in Ukraine. We urge Ukrainian families to contact us.

On the run with the Duchenne

Ivanna, Max and Mark were fleeing to Poland. They found a welcome in Prague, thanks to global help of Duchenne patient organizations.

The strength of the fragile people: Duchenne and Becker MD in Ukraine during the war

The World Duchenne Organization activated the DMD Emergency program for the victims of the Ukrainian conflict.

2021 Wrap-up: Reflections, Activities, Moving Forward

The year 2022 is greeting us, bursting with new opportunities. Before waving goodbye to 2021, Elizabeth Vroom is reflecting back…

PPMD India joins World Duchenne Organization

The Akari Foundation for Duchenne muscular dystrophy affected in Texas, United States

The Akari Foundation joins World Duchenne Organization

The Akari Organization supports low-income Hispanic families with people affected by Duchenne in San Antonio, Texas.

Adam Peska to win gold medal in Boccia at Tokyo Paralympics

Adam Peska from the Czech Republic won a gold medal in individual boccia BC3 at the 2020 Summer Paralympics in Tokyo, Japan.

Philip Jönsson first person with Duchenne MD to win gold at Paralympics

Today, Philip Jönsson won the gold medal in the mixed 10m air rifle standing SH2 event at the 2020 Summer Paralympics held in Tokyo, Japan.

DMD Care Association Romania joins World Duchenne Organization

DMD Care Association provides support for children and families affected by Duchenne in Romania. They are World Duchenne Organization member.

Duchenne Family Support Group joins WDO

In 1987, a small group of parents regularly met at their clinic appointments. Now, they join the global Duchenne family support community.

Duchenne Australia joins World Duchenne Organization

Australia's youngest Duchenne Muscular Dystrophy organization was launched on World Duchenne Awareness Day 2020. Now, they joined the World Duchenne Organization.

The experience as mother of a Duchenne adult who recently turned 30

Elizabeth Vroom shares her experience as mother of a Duchenne young man who recently celebrated his 30th birthday. Elizabeth Vroom…

Enlace Mexico: WDO’s 45th Member Organization

Enlace Distrofia Muscular Duchenne Becker is the only non-profit organization providing optimal medical, emotional and psychological care for DMD/BMD patients…

WDO welcomes 44th member patient organization: DMD Aileleri

DMD Aileleri Derneği (meaning DMD Families Association in Turkish) started Turkey by families whose children are diagnosed with Duchenne and…

New Russian patient organization 'CF Gordey' joins WDO

CF Gordey is a family created patient advocacy organization who is working with families, healthcare, society and the state to…

Finland establishes first Duchenne patient organization

On Benjamin's first birthday, the Finell family received a phone call from the hospital that not only Benjamin but also…

First reported case of COVID-19 in person affected by Duchenne

Last week, the news has reached us that a young Duchenne adult from Belgium has been infected with COVID-19. The…

La Force DMD joins the World Duchenne Organization

Since the official start of the World Duchenne Organization in 2007 (then named United Parent Projects Muscular Dystrophy), the number…

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Live Feed: Emergency situation in Ukraine for Duchenne and Becker MD families

On the run with the Duchenne

The strength of the fragile people: Duchenne and Becker MD in Ukraine during the war

2021 Wrap-up: Reflections, Activities, Moving Forward

PPMD India joins World Duchenne Organization

The Akari Foundation joins World Duchenne Organization

Adam Peska to win gold medal in Boccia at Tokyo Paralympics

Philip Jönsson first person with Duchenne MD to win gold at Paralympics

DMD Care Association Romania joins World Duchenne Organization

Duchenne Family Support Group joins WDO

Duchenne Australia joins World Duchenne Organization

The experience as mother of a Duchenne adult who recently turned 30

Enlace Mexico: WDO’s 45th Member Organization

WDO welcomes 44th member patient organization: DMD Aileleri

New Russian patient organization 'CF Gordey' joins WDO

Finland establishes first Duchenne patient organization

First reported case of COVID-19 in person affected by Duchenne

La Force DMD joins the World Duchenne Organization

Warning on stem cell therapy in Duchenne

Adult Life & Duchenne

ENMC workshop to refine recommendations for female carriers