ERDERA
BEhavioral and Adherence Model for improving quality, health outcomes and
cost-Effectiveness of healthcaRe
BEAMER
BEhavioral and Adherence Model for improving quality, health outcomes and
cost-Effectiveness of healthcaRe
EURO-NMD Registry Hub
EURO-NMD, ERN for Rare Neuromuscular Diseases, spans 14 European countries, with 61 reference centres that oversee more than 100,000 patients.…
FAIR Data Declaration
The World Duchenne Organization and several of its members have been advocating for better use of Duchenne data, which is…
BIND
First project of this scale to improve characterisation of brain involvement in Duchenne and Becker Muscular Dystrophy
VISION-DMD
VISION-DMD is a collaborative global project aiming to develop a safe, effective and affordable therapy for Duchenne Muscular Dystrophy (DMD).…
Share4Rare
A rare disease affects less than 5 in 10.000 persons, and the 50% of them are children. Keeping this number…
Trials@Home
The Trials@Home consortium is exploring the opportunities of moving clinical trials from the traditional clinic setting to the participant's immediate…
