1 2 aim
  • Worldwide accreditation for Duchenne care centers.

    The Accredited Duchenne Centers Program aims to develop a worldwide accreditation for Duchenne Muscular Dystrophy care centers.

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Accredited Duchenne Centers Program

Aim

To make sure that Duchenne centers for pediatric and/or adult care are providing multidisciplinary care according to the latest Care considerations.

Procedure

After an online pre-screening, the selected centers receive a site visit by international Duchenne experts to examine whether centers provide care according to the latest Care considerations.

Training about care

For Accredited Centers, continuing education and training will be provided through the Duchenne Care Conference, and will include modules about latest research insights.

Accredited Duchenne Centers Program

About the ADC Program

The program is set up to improve the standardization of optimal Duchenne care around the globe.

Become one of the first centers to receive accreditation for providing care in line with the Care Considerations.

Our Process

Accredited Duchenne Centers Program

The Accredited Duchenne Centers Program is a program by the World Duchenne Organization.

Step 1: Application

Centers interested to become an Accredited Duchenne Center (ADC) can apply via the ADC website, completing the documents.

Step 2: Evaluation

A digital questionnaire determines whether centers comply with the criteria, before a visitation can be planned.

Step 3: Visitation

A site visit is scheduled and performed with international experts. Semi-structured interviews are conducted with professionals and patients/parents.

Step 4: Accreditation

In case of a positive review, the center becomes an Accredited Duchenne Center and receives ongoing education.

Testimonials

Advisory Board

These experts join the international multidisciplinary Advisory Board to develop a worldwide accreditation for Duchenne centers for pediatric and/or adult care.

ADC-Advisory-Board_Nathalie-Goemans
Prof Nathalie Goemans

Advisory Board Chair

ADC-Advisory-Board_Susan-Apkon
Prof Susan Apkon

Advisory Board Member

ADC-Advisory-Board_Alberto-Dubrovsky
Prof Alberto Dubrovsky

Advisory Board Member

ADC-Advisory-Board_Teresinha-Evangelista
Dr Teresinha Evangelista

Advisory Board Member

ADC-Advisory-Board_Agneta-Golan
Dr Agneta Golan

Advisory Board Member

ADC-Advisory-Board_Juliana-Gurgel-Giannetti
Prof Juliana Gurgel-Giannetti

Advisory Board Member

ADC-Advisory-Board_Jana-Haberlova
Dr Jana Haberlova

Advisory Board Member

ADC-Advisory-Board_Erik-Henricson
Dr Erik Henricson

Advisory Board Member

ADC-Advisory-Board_Eugenio-Mercuri
Prof Eugenio Mercuri

Advisory Board Member

ADC-Advisory-Board_Ros-Quinlivan
Prof Ros Quinlivan

Advisory Board Member

ADC-Advisory-Board_Karim-Wahbi
Prof Karim Wahbi

Advisory Board Member

Dr Jarod Wong
Dr Jarod Wong

Advisory Board Member

Apply to become an Accredited Center

Applications to become an Accredited Duchenne Center are now open. Register your interest by completing the registration form.

World Duchenne
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