The Accredited Duchenne Centers Program is part of the unique development of a worldwide accreditation for Duchenne Centers. It consists of an ongoing development of the process of criteria and visitation leading to the right to be named an Accredited Duchenne Center.
This Program is not only accrediting Duchenne Care Centers which are providing multidisciplinary care according to the latest Standards of Care and Care recommendations, but also provides training regarding optimal Duchenne care and support for Duchenne centers which can not –yet– fulfill the criteria for accreditation.
For Accredited Centers, continuing education and training is provided including modules about latest research insights and gene therapy readiness. A yearly Duchenne Care Conference is part of the program.
The program team consists of Dr Imelda de Groot (program leader), Dr Merel Jansen (program manager), Dr Karolina Podolská (program support), Elizabeth Vroom (World Duchenne Organization) and Suzie-Ann Bakker (program support). The international multidisciplinary Advisory Board is chaired by Prof Nathalie Goemans.
The Accreditation Process consists of site visits after a thorough pre-screening via questionnaires for clinicians, allied therapists and families. The Accredited Duchenne Centers Program welcomes applications that can be initiated via the ADC website.
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