Accredited Duchenne Centers Program
The Accredited Duchenne Centers Program is part of the unique development of a worldwide accreditation for Duchenne Centers. It consists of an ongoing development of the process of criteria and visitation leading to the right to be named an Accredited Duchenne Center.
This Program is not only accrediting Duchenne Care Centers which are providing multidisciplinary care according to the latest Standards of Care and Care recommendations, but also provides training regarding optimal Duchenne care and support for Duchenne centers which can not –yet– fulfill the criteria for accreditation.
Process and application
Accredited Duchenne Centers Program
For Accredited Centers, continuing education and training is provided including modules about latest research insights and gene therapy readiness. A yearly Duchenne Care Conference is part of the program.
The program team consists of Dr Imelda de Groot (program leader), Dr Merel Jansen (program manager), Dr Karolina Podolská (program support), Elizabeth Vroom (World Duchenne Organization) and Suzie-Ann Bakker (program support). The international multidisciplinary Advisory Board is chaired by Prof Nathalie Goemans.
The Accreditation Process consists of site visits after a thorough pre-screening via questionnaires for clinicians, allied therapists and families. The Accredited Duchenne Centers Program welcomes applications that can be initiated via the ADC website.
ADC Program Team
Prof Nathalie Goemans
Advisory Board Chair
Dr Imelda de Groot
Program Lead
Elizabeth Vroom
Patient Representative
Dr Merel Jansen
Program Manager
Dr Karolína Podolská
Program Support
Suzie-Ann Bakker
Program Support
ADC Advisory Board
Prof Nathalie Goemans
Advisory Board Chair
Prof Susan Apkon
Advisory Board Member
Prof Alberto Dubrovsky
Advisory Board Member
Dr Teresinha Evangelista
Advisory Board Member
Dr Agneta Golan
Advisory Board Member
Prof Juliana Gurgel-Giannetti
Advisory Board Member
Dr Jana Haberlova
Advisory Board Member
Dr Erik Henricson
Advisory Board Member
Prof Eugenio Mercuri
Advisory Board Member
Prof Ros Quinlivan
Advisory Board Member
Prof Karim Wahbi
Advisory Board Member
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