The Accredited Duchenne Centers Program is part of the unique development of a worldwide accreditation for Duchenne Centers. It consists of an ongoing development of the process of criteria and visitation leading to the right to be named an Accredited Duchenne Center.
This Program will not only accredit Duchenne Care Centers which are providing multidisciplinary care according to the latest Standards of Care and Care recommendations, but will also provide training regarding optimal Duchenne care and support for Duchenne centers which can not –yet– fulfill the criteria for accreditation.
For Accredited Centers, continuing education and training will be provided including modules about latest research insights and gene therapy readiness. A yearly Duchenne Care Conference is part of the program.
The program team consists of Dr Imelda de Groot (program leader), Dr Merel Jansen (program manager), Elizabeth Vroom (World Duchenne Organization) and Suzie-Ann Bakker (program support). The international multidisciplinary Advisory Board is chaired by Prof Nathalie Goemans.
The Accreditation Process itself will consist of site visits after a thorough pre-screening via questionnaires for clinicians, allied therapists and families. The Accredited Duchenne Centers Program aims to open applications to become an Accredited Center by December 2022. The program will be supported by Duchenne Data Foundation.
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