Emergency Card

About

In emergencies it is of the essence to have the right information with you to share with Paramedics, at the Emergency or Intensive Care Unit, with your Family doctor and anyone else involved.

Emergencies hardly ever occur in front of the hospital where they know you. Have it with you at all times to avoid waste of precious time.

Download a template for an emergency card, (PDF, 222Kb)
Note: This is only a mock-up to show how these cards could look, and not an official card. 

Guide

Emergency Care in Duchenne Muscular Dystrophy: Free Clinical Guidance PDF Download

When an acute illness, injury, or medical emergency occurs, having immediate access to Duchenne-specific protocols can make a life-saving difference. Published by the World Duchenne Organization, this clinical guidance brochure equips families, caregivers, and medical professionals with critical emergency management instructions. Download your copy to ensure you and your healthcare team have quick access to essential care considerations during emergency department visits, surgeries, or unexpected medical events.

Download the PDF

What’s Included in This Guide:

• Stress-Dose Steroid Management: Protocol for managing HPA-axis suppression and preventing life-threatening adrenal crisis during illness, trauma, or surgery.
• Emergency Respiratory Care: Critical guidelines for handling acute respiratory failure, non-invasive ventilation (BiPAP), emergency ambu bag use, and vital warnings against administering oxygen without ventilatory support.
• Cardiac & Anesthesia Risks: Emergency management for dilated cardiomyopathy and heart failure, plus strict precautions on avoiding dangerous anesthetic agents (such as succinylcholine).
• Trauma & Fat Embolism Syndrome (FES): Key warning signs and emergency procedures for handling fractures, falls, and the risk of FES.
• Acute Complications & Lab Considerations: Detailed guidance on recognizing rhabdomyolysis, normoglycaemic ketoacidosis, safe pain and fluid management, and acute gastrointestinal issues.
• Printable Emergency Card Template: A handy emergency reference card to carry with you to instantly inform emergency room doctors and healthcare teams of Duchenne-specific risks.