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World Duchenne Awareness Day

Global awareness day for Duchenne and Becker

In 2013, a group of dreamers from World Duchenne Organization began to imagine a day dedicated to raising awareness about Duchenne and Becker muscular dystrophy. A day on which, all over the world, a symbolic gesture would be made that would be transported everywhere.

The date, 7 September (7/9) is a reference to the 79 exons of the Duchenne gene. The balloon is chosen as symbol to fly Duchenne out of this world. This led to the involving the Duchenne community in every corner of the world, that helps to choose a specific theme to attract everyone’s attention.

Over the years, more countries and organizations are becoming involved. World Duchenne Awareness Day managed to raise general awareness, and specific topics for the Duchenne community. The European Parliament, Pope, and many other famous people recognize the value of this global event.

Visit the WDAD site

Past activities on World Duchenne Awareness Day

Nutrition in DMD

Information to increase understanding of nutrition and supplement use in Duchenne Muscular Dystrophy.

FAQ’S in Duchenne Nutrition

Dr Zoe Davidson answers 17 most frequently asked questions about nutrition in DMD.

Bring Your Light

A global collaboration of Duchenne families to raise awareness on DMD and BMD in the general public.