News Archive • World Duchenne

Showing all 13 results

Prof. Annemieke Aartsma-Rus is taking on a challenge by reading and commenting on a paper a day. See below the overview of October 2022.

Santhera and ReveraGen Complete NDA Submission to FDA and MAA Submission for EMA for Vamorolone as a potential treatment for DMD.

Do you have an innovative project related to the Duchenne field? Submit an E-Poster for Duchenne Patient Academy 2022!

The World Duchenne Organization is pleased to announce that the 3rd International FAIR data ‘visiting’ for Duchenne & Other Rare…

Duchenne Patient Academy 2022 Applications Now Open. Help drive the international advocacy agenda for people living with dystrophinopathies.

World Duchenne Organization announces the launch of the Accredited Duchenne Centers Program, a worldwide accreditation for Duchenne Centers.

13-15 May 2022, an ENMC workshop was organized on females carriers of dystrophinopathy. The lay summary is available in several languages.

New CHIOMS report on patient involvement in the development, regulation and safe use of medicines is now available for download.

Parent Project Muscular Dystrophy Females with Dystrophinopathy Conference, Orlando, Florida June 26 – June 27, 2019

WDO Leadership Award, the highest recognition for individual achievement, is awarded to Professor Francesco Muntoni.

How much dystrophin is needed for survival and function in Duchenne? Paper shows that little bits of dystrophin already can go a long way.

Duchenne Parent Project NL and EURO-NMD can now begin leveraging their FAIR data to benefit People Living With Rare Diseases.

Today’s pick for the Women and Duchenne theme focuses on female caregivers (usually mothers) of Duchenne patients and their needs.

News