News Archive • World Duchenne

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MyoCare DMD Clinic at Egyptair Hospital, Cairo, Egypt, led by dr. Rasha El Sherif, has been officially granted the title of Accredited Duchenne Center (ADC) for children with Duchenne muscular dystrophy (DMD)

July 2, 2026

The ADC visitation committee for this accreditation was led by prof. Imelda de Groot, joined by prof. Nathalie Goemans and…

WDO Member Webinar: DMD research updates presented at the MDA conference

April 30, 2026

On Tuesday, 28 April, the World Duchenne Organization (WDO) hosted a members-only webinar to share the latest developments in Duchenne…

2014: Many Faces of Duchenne

April 22, 2026

For the first edition of the World Duchenne Awareness Day in 2014, it was essential to explain to the civil…

Dr. Imelda de Groot Award 2026: applications now open

April 17, 2026

The Dr. Imelda de Groot Award is an incentive prize for care and innovation, initiated by Duchenne Parent Project Netherlands.…

Registration open for Duchenne Care Conference 2026

April 8, 2026

We invite healthcare professionals and patient organization representatives to attend the Duchenne Care Conference 2026, taking place online on May 26…

Successful conclusion of Duchenne Patient Academy 2025

December 22, 2025

The World Duchenne Organization and the Duchenne Data Foundation are proud to announce the successful conclusion of the Duchenne Patient…

The Neuromuscular Clinic at Children’s Hospital Zagreb, led by dr. Jadranka Sekelj Fureš, has been officially granted the title of Accredited Duchenne Center (ADC) for children with Duchenne muscular dystrophy (DMD)

November 20, 2025

The ADC visitation committee for this accreditation was led by associate professor Jana Haberlova, joined by prof. Rosaline Quinlivan and…

Duchenne Patient Academy 2025: Registrations are now open

November 13, 2025

We are excited to announce the 2025 edition of the Duchenne Patient Academy, which will be held fully online on…

FAIR Training Webinar Empowers Global Community to Advance FAIR Data Implementations in Rare Diseases

October 8, 2025

The World Duchenne Organization, in collaboration with ERDERA and its associated partners, successfully hosted the FAIR Training Webinar, bringing together…

From Data Silos to FAIR Solutions: The Duchenne Community Leads the Way

October 6, 2025

World Duchenne Organization Announces New Milestones in Making DMD/BMD Data FAIR Veenendaal, 6th October 2025: The World Duchenne Organization, together…

Christian Medical College and Hospital, Ludhiana, India, accredited under the Accredited Duchenne Centers (ADC) Program

October 1, 2025

The Neuromuscular center in Christian Medical College and Hospital (CMC), Ludhiana, Punjab, India, has been accredited as the newest center…

What to expect at the FAIR Training Webinar 2025

September 17, 2025

What to expect at the FAIR Training Webinar 2025 With the agenda now finalized, the first part of the FAIR…

Family: the heart of care - WDAD2025 Documentary

September 7, 2025

“Family: the heart of care” The documentary of World Duchenne Organization launched on World Duchenne Awareness Day Duchenne muscular dystrophy…

Family: the heart of care - WDAD2025 Documentary

September 7, 2025

“Family: the heart of care” The documentary of World Duchenne Organization launched on World Duchenne Awareness Day Duchenne muscular dystrophy…

European Parliament patronage for WDAD

September 5, 2025

World Duchenne Awareness Day has received the patronage of the European Parliament, a recognition of great significance that highlights the…

European Parliament patronage for WDAD

September 5, 2025

World Duchenne Awareness Day has received the patronage of the European Parliament, a recognition of great significance that highlights the…

Trailer of the WDAD 2025 Documentary – Family, the Heart of Care

August 29, 2025

“Family means everyone helps each other, everyone is there for each other, even in hard times.” Family means so much.…

Trailer of the WDAD2025 Documentary – Family, the Heart of Care

August 29, 2025

“Family means everyone helps each other, everyone is there for each other, even in hard times.” Family means so much.…

FAIR Training Program 2025 - 2027: Registration now open for Part 1

July 21, 2025

Advancing FAIR Data Practices for Rare Disease Research Part 1 (2025) of the FAIR Training Program is now open…

Fundraising initiative dedicated to the Global Duchenne Community

June 19, 2025

Nithin lives in the UK. He recently completed a charity fundraiser event towards World Duchenne Organization, to a sum of…

2025: Family: the heart of care

June 6, 2025

With this year’s theme, World Duchenne Awareness Day (WDAD) highlights the role of family members for people living with Duchenne…

The World Duchenne Awareness Day 2025 theme is “Family: the heart of care”

June 6, 2025

With this year’s theme, World Duchenne Awareness Day (WDAD) highlights the role of family members for people living with Duchenne…

The World Duchenne Awareness Day 2025 theme is “Family: the heart of care”.

June 6, 2025

With this year’s theme, World Duchenne Awareness Day (WDAD) highlights the role of family members for people living…

Duchenne Care Conference 2025 highlights advances in clinical management of DMD and BMD

June 4, 2025

The Duchenne Care Conference 2025, organized by the World Duchenne Organization, took place virtually on May 26–27, 2025. It gathered…

Centre for Neuromuscular Disease, National Hospital for Neurology and Neurosurgery receives Accredited Duchenne Center Status

May 2, 2025

We are delighted to share that Centre for Neuromuscular Disease at the National Hospital for Neurology and Neurosurgery, London, UK…

Registration is now open for the Duchenne Care Conference 2025

March 28, 2025

The World Duchenne Organization is thrilled to announce that registrations are now open for the Duchenne Care Conference 2025. The…

Dr. Victor Gomoiu Children’s Hospital – Center of expertise in rare neurological diseases has been granted the title of Accredited Duchenne Center for children with Duchenne muscular dystrophy

March 10, 2025

The neuromuscular team, led by Associate Professor Raluca Ioana Teleanu as the pediatric neurologist, showed they provide multidisciplinary care according…

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MyoCare DMD Clinic at Egyptair Hospital, Cairo, Egypt, led by dr. Rasha El Sherif, has been officially granted the title of Accredited Duchenne Center (ADC) for children with Duchenne muscular dystrophy (DMD)

WDO Member Webinar: DMD research updates presented at the MDA conference

2014: Many Faces of Duchenne

Dr. Imelda de Groot Award 2026: applications now open

Registration open for Duchenne Care Conference 2026

Successful conclusion of Duchenne Patient Academy 2025

The Neuromuscular Clinic at Children’s Hospital Zagreb, led by dr. Jadranka Sekelj Fureš, has been officially granted the title of Accredited Duchenne Center (ADC) for children with Duchenne muscular dystrophy (DMD)

Duchenne Patient Academy 2025: Registrations are now open

FAIR Training Webinar Empowers Global Community to Advance FAIR Data Implementations in Rare Diseases

From Data Silos to FAIR Solutions: The Duchenne Community Leads the Way

Christian Medical College and Hospital, Ludhiana, India, accredited under the Accredited Duchenne Centers (ADC) Program

What to expect at the FAIR Training Webinar 2025

Family: the heart of care - WDAD2025 Documentary

Family: the heart of care - WDAD2025 Documentary

European Parliament patronage for WDAD

European Parliament patronage for WDAD

Trailer of the WDAD 2025 Documentary – Family, the Heart of Care

Trailer of the WDAD2025 Documentary – Family, the Heart of Care

FAIR Training Program 2025 - 2027: Registration now open for Part 1

Fundraising initiative dedicated to the Global Duchenne Community

2025: Family: the heart of care

The World Duchenne Awareness Day 2025 theme is “Family: the heart of care”

The World Duchenne Awareness Day 2025 theme is “Family: the heart of care”.

Duchenne Care Conference 2025 highlights advances in clinical management of DMD and BMD

Centre for Neuromuscular Disease, National Hospital for Neurology and Neurosurgery receives Accredited Duchenne Center Status

Registration is now open for the Duchenne Care Conference 2025

Dr. Victor Gomoiu Children’s Hospital – Center of expertise in rare neurological diseases has been granted the title of Accredited Duchenne Center for children with Duchenne muscular dystrophy

New Accredited Duchenne Center: Department of Pediatric, Semmelweis University

Clinic of Neurology and Psychiatry for Children and Youth in Belgrade, Serbia Accredited by ADC Program

Antalya Neuromuscular Center at Antalya Training and Research Hospital Accredited by the ADC Program

Road to independence: Documentary about young people with NMD

Webinar Recording: Understanding the role of dystrophin in the brain in DMD/BMD

Applications now open for Duchenne Patient Academy 2024