Dr. Imelda de Groot Award 2026: applications now open
The Dr. Imelda de Groot Award is an incentive prize for care and innovation, initiated by Duchenne Parent Project Netherlands.…
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Registration open for Duchenne Care Conference 2026
We invite healthcare professionals and patient organization representatives to attend the Duchenne Care Conference 2026, taking place online on May 26…
Successful conclusion of Duchenne Patient Academy 2025
The World Duchenne Organization and the Duchenne Data Foundation are proud to announce the successful conclusion of the Duchenne Patient…
The Neuromuscular Clinic at Children’s Hospital Zagreb, led by dr. Jadranka Sekelj Fureš, has been officially granted the title of Accredited Duchenne Center (ADC) for children with Duchenne muscular dystrophy (DMD)
The ADC visitation committee for this accreditation was led by associate professor Jana Haberlova, joined by prof. Rosaline Quinlivan and…
Duchenne Patient Academy 2025: Registrations are now open
We are excited to announce the 2025 edition of the Duchenne Patient Academy, which will be held fully online on…
FAIR Training Webinar Empowers Global Community to Advance FAIR Data Implementations in Rare Diseases
The World Duchenne Organization, in collaboration with ERDERA and its associated partners, successfully hosted the FAIR Training Webinar, bringing together…
From Data Silos to FAIR Solutions: The Duchenne Community Leads the Way
World Duchenne Organization Announces New Milestones in Making DMD/BMD Data FAIR Veenendaal, 6th October 2025: The World Duchenne Organization, together…
Christian Medical College and Hospital, Ludhiana, India, accredited under the Accredited Duchenne Centers (ADC) Program
The Neuromuscular center in Christian Medical College and Hospital (CMC), Ludhiana, Punjab, India, has been accredited as the newest center…
What to expect at the FAIR Training Webinar 2025
What to expect at the FAIR Training Webinar 2025 With the agenda now finalized, the first part of the FAIR…
Family: the heart of care - WDAD2025 Documentary
“Family: the heart of care” The documentary of World Duchenne Organization launched on World Duchenne Awareness Day Duchenne muscular dystrophy…
Family: the heart of care - WDAD2025 Documentary
“Family: the heart of care” The documentary of World Duchenne Organization launched on World Duchenne Awareness Day Duchenne muscular dystrophy…
European Parliament patronage for WDAD
World Duchenne Awareness Day has received the patronage of the European Parliament, a recognition of great significance that highlights the…
European Parliament patronage for WDAD
World Duchenne Awareness Day has received the patronage of the European Parliament, a recognition of great significance that highlights the…
Trailer of the WDAD2025 Documentary – Family, the Heart of Care
“Family means everyone helps each other, everyone is there for each other, even in hard times.” Family means so much.…
Trailer of the WDAD2025 Documentary – Family, the Heart of Care
“Family means everyone helps each other, everyone is there for each other, even in hard times.” Family means so much.…
FAIR Training Program 2025 - 2027: Registration now open for Part 1
Advancing FAIR Data Practices for Rare Disease Research Part 1 (2025) of the FAIR Training Program is now open…
Fundraising initiative dedicated to the Global Duchenne Community
Nithin lives in the UK. He recently completed a charity fundraiser event towards World Duchenne Organization, to a sum of…
2025: Family: the heart of care
With this year’s theme, World Duchenne Awareness Day (WDAD) highlights the role of family members for people living with Duchenne…
The World Duchenne Awareness Day 2025 theme is “Family: the heart of care”
With this year’s theme, World Duchenne Awareness Day (WDAD) highlights the role of family members for people living with Duchenne…
The World Duchenne Awareness Day 2025 theme is “Family: the heart of care”.
With this year’s theme, World Duchenne Awareness Day (WDAD) highlights the role of family members for people living…
Duchenne Care Conference 2025 highlights advances in clinical management of DMD and BMD
The Duchenne Care Conference 2025, organized by the World Duchenne Organization, took place virtually on May 26–27, 2025. It gathered…
Centre for Neuromuscular Disease, National Hospital for Neurology and Neurosurgery receives Accredited Duchenne Center Status
We are delighted to share that Centre for Neuromuscular Disease at the National Hospital for Neurology and Neurosurgery, London, UK…
Registration is now open for the Duchenne Care Conference 2025
The World Duchenne Organization is thrilled to announce that registrations are now open for the Duchenne Care Conference 2025. The…
Dr. Victor Gomoiu Children’s Hospital – Center of expertise in rare neurological diseases has been granted the title of Accredited Duchenne Center for children with Duchenne muscular dystrophy
The neuromuscular team, led by Associate Professor Raluca Ioana Teleanu as the pediatric neurologist, showed they provide multidisciplinary care according…
New Accredited Duchenne Center: Department of Pediatric, Semmelweis University
It is with pleasure that we announce new Accredited Duchenne Center for children with Duchenne Muscular Dystrophy – Department of…
Clinic of Neurology and Psychiatry for Children and Youth in Belgrade, Serbia Accredited by ADC Program
Clinic of neurology and psychiatry for children and youth in Belgrade, Serbia has been granted the title of Accredited Duchenne…
Antalya Neuromuscular Center at Antalya Training and Research Hospital Accredited by the ADC Program
The Antalya Neuromuscular Center, part of Antalya Training and Research Hospital in Turkey, has become the latest center accredited under the Accredited…
World Duchenne Organization welcomes Habib Dystrophy Hope Foundation as Aspiring Member
We are excited to announce that Habib Dystrophy Hope Foundation has joined the World Duchenne Organization as our newest Aspiring…
Call of interest: Global DMD Adult Group
The Global DMD Adult Group, initiated by adults with Duchenne Muscular Dystrophy (DMD), aims to connect and empower people living…
Care Guidelines for Becker muscular dystrophy now available
On September 14, the Becker Care Guidelines for the Clinical Management of Becker Muscular Dystrophy (BMD) were officially presented at…
