Objectives of members
Member organizations should have or develop a program for Duchenne and/or Becker Muscular Dystrophy (DMD/BMD). The organization would have to positively promote research, optimal care, knowledge, and education.
Ideally a parent or affected person should chair the project. Where this is not possible, for want of someone to fulfil the role, a parent or affected person should have a significant strategic leadership role.
The organization should have a not-for-profit legal constitution with a management committee that is accountable to its membership.
Statement of activities
Each participating organization will produce an annual statement of its activities with the relevant financial information.
Members per country
If there is already an organization with membership in a country, other organizations are encouraged to become a WDO member as well. The more countries are connected, and the more members we have, the stronger our voice can be.
The height of the membership fee is calculated upon the organizations’ annual income.
- Annual income € 100.000 or more – membership fee of € 1.000
- Annual income between € 5.000 and € 100.000 – membership fee is 1% of the annual income
- Annual income lower than € 5.000 – minimal membership fee of € 50
Organizations will need to submit their annual financial statements each year.
Membership can be terminated by unanimous decision of the executive committee, if a member fails to uphold the above mentioned criteria and the reputation of WDO.