1 2 aim

Democratizing access to information and care

Empowering DMD families in developing countries

The World Duchenne Organization (WDO) receives a grant to empower patients and parents in developing countries affected by Duchenne Muscular Dystrophy (DMD). This initiative aims to educate patient advocates and foster the creation of new patient organizations.

Regions in South Africa, South Asia and Africa receive education and mentoring in terms of research, care, capacity-building, policy and awareness while supporting them to create and sustain national patient organizations.

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Project phases

The project is divided into two phases. The first phase ‘Advocacy, Education and Training’ will focus on engaging developing countries in an open multi stakeholder educational platform. Experts from every field meet with advocacy leaders to exchange knowledge, experiences and best practices.

The second phase will be focusing on ‘Capacity Building, Patient Organization Setup and Mentoring’. During this phase, additional training will be directed to families interested in setting up an organization in their country. This includes how to get legal recognition, map the community, and engage with various stakeholders.