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Privacy & Cookie statement





Privacy- and cookie statement World Duchenne Organization


World Duchenne Organization considers the protection of the privacy of its relations and website visitors essential. Personal data is therefore treated and protected with the greatest possible care. In all cases we adhere to the requirements set in the General Data Protection Regulation (GDPR). The controller of the personal data is World Duchenne Organization.


Why do we process personal data?


World Duchenne Organization handles, processes and protects your personal data with the utmost care. Transparency is paramount. You can always request, change or remove your personal data registered with us, provided that this is permitted by law.

World Duchenne Organization collects and processes personal data for clear and predetermined purposes, because this is necessary for, among other things:


  • entering into and executing (member, donor, and other) agreements;
  • conducting the membership and donor administration;
  • offering services, sending newsletters and magazines, invitations, promotional and marketing purposes;
  • querying members and doing research;
  • registering your settings and preferences with regard to the use of the website (via cookies);
  • entering into cooperation with third parties;
  • our business operations;
  • compliance with legal obligations;
  • archival purposes, where data is only used for legal proceedings or for historical, statistical or scientific purposes.


We process the personal data via, among other things, our advisors, administration and our website. This is done on the basis of permission or based on our legitimate interest. Outside of the aforementioned processing purposes, we do not process your personal data without your prior consent.


Which personal data?


World Duchenne Organization collects different categories of personal data, these are:

  • name and address
  • mail address;
  • interaction data (for example cookie or information that is received when you contact us. For example, a note of the conversation with the participants is saved).


World Duchenne Organization collects (personal) data directly from you, but in some cases World Duchenne Organization also receives personal data via third parties insofar as this is in accordance with the law.




World Duchenne Organization offers a newsletter that informs our donors, applicants, volunteers and other interested parties about news from and about our organization, events and related matters. Your e-mail address will only be added to the list of subscribers with your explicit permission. Every newsletter contains a link that you can use to unsubscribe. The newsletter subscriber file is not provided to third parties.


Data sharing with third parties

Unless specified in this Privacy and cookie statement, your personal data will not be sold or otherwise shared with or provided to third parties. World Duchenne Organization can share your (personal) data with third parties if you have given your consent.

World Duchenne Organization provides personal information to enforcement authorities or anti-fraud organizations when it is necessary to comply with a legal obligation.


Periods of retention

World Duchenne Organization stores your personal data in accordance with the GDPR. The data is not kept longer than is strictly necessary to achieve the purposes for which the data was collected.


Requests of data subjects (access, correction or removal)


You can submit a request for access, correction or removal of your personal data to World Duchenne Organization. Indicate clearly what the request is under the GDPR. A removal request is only possible insofar as World Duchenne Organization can still meet its legal obligations, such as the legal retention periods.




World Duchenne Organization naturally handles personal data confidentially. We take appropriate technical and organizational measures to protect personal data. World Duchenne Organization only shares personal data in accordance with this Privacy and Cookie Statement and only with third parties if this is permitted and done with care.

Commissioned by World Duchenne Organization, business service providers can provide certain parts of the service. World Duchenne Organization makes agreements with these processors to guarantee confidential and careful handling of personal data. These agreements are contractually laid down in so-called “data processing agreements”.



World Duchenne Organization has taken appropriate measures to protect personal data against loss or any form of unlawful processing. Hereby the greatest possible accuracy is strived for and account is taken of the state of the art, the costs of implementation, the risks of data processing and the nature of the data.


Click behavior


General visit data is kept on the World Duchenne Organization website, such as the most consulted pages. The purpose of this is to optimize the website. We can also use the data to put more targeted information on the site. This allows World Duchenne Organization to adjust its services to the wishes of its visitors.


Use of cookies

World Duchenne Organization places cookies to make the use of the website easier for you. A cookie is a simple small file that is sent along with pages from this website and is stored by your browser on the hard disk of your computer. The information stored therein can be sent back to our servers on a subsequent visit.


Accept cookies

Our website works best if you accept the cookies. You can easily accept our cookies in the cookie message that appears at the bottom of the homepage during your first visit to the website.


Delete or disable cookies

You can also disable cookies by disabling this cookie setting in your specific browser.



What kind of cookies do we use?


Functional cookies

For the correct functioning of the software with which this website is built, a number of cookies are necessary, namely the functional cookies.


Analytical cookies

The analytical cookies collect information about how our visitors use the website. The information we obtain with this helps us to improve the website, so that it better meets your wishes. We use:


Google Analytics to create anonymous overviews of visitor traffic on our website and to determine how effective our advertisements are. Google Analytics uses this cookie to track data on website visits.

We have taken privacy-enhancing measures when implementing Google Analytics.


Tracking cookies

The tracking cookies collect information about the surfing behavior of our website visitors. With this information we can make the website fit your information needs even better

If you have disabled the use of cookies in your browser, you can still visit most parts of the website.


Social buttons

On our site buttons are included to promote or share articles, funds by name or projects on Facebook, Twitter or by e-mail. These buttons contain pieces of code from the social media itself, and use a cookie. This cookie remembers that you are logged in so that you do not have to log in to Twitter or Facebook every time you want to share something. To see what these parties do with the personal data they receive with this code, you can view the privacy statements of Facebook and Twitter (which can change regularly).



Embedded content

In the web articles on the site content might be used that is already used on other sites and made visible on our site. Think of YouTube or Vimeo videos. These codes often use cookies in a similar way to the social buttons. What these parties do with the cookies and personal data can be found in the privacy policy of the relevant party. We have no control over this.



Links to other sites

On the World Duchenne Organization website some links to websites of other parties are included. World Duchenne Organization is not responsible for the way in which these parties handle your data. Therefore, check whether the site you visited contains a privacy statement. If so, read this to see if you agree with the privacy policy of the party in question.

World Duchenne Organization uses the services of Mollie for the settlement of payment transactions. This party also has access to the transaction data. With the exception of legal coercion, this information is not provided to third parties.



Latest version

This Privacy and Cookie Statement was last amended on 27 February 2020.

World Duchenne Organization reserves the right, where necessary, to make changes to the Privacy and Cookie Statement. You are responsible for keeping abreast of the latest version of this statement. We recommend that you regularly check whether there are adjustments.




Do you have specific questions or comments about our Privacy and cookie statement as a result of this information? Please contact us via [email protected]. You can also send a letter to the address below:


World Duchenne Organization

Attn: The Board of World Duchenne Organization

Landjuweel 34

3905 PG Veenendaal

The Netherlands