ERDERA
To leave no one behind, over 170 organisations championed by the European Union and members states are working hand in hand to make Europe a world leader in rare diseases research and innovation. The European Rare Disease Research Alliance (ERDERA) takes over EJPRD to deliver concrete health benefits to rare disease patients in the next decade by advancing prevention, diagnosis and treatment research.
The ERDERA partnership is an initiative spearheaded by the European Union under Horizon Europe and led by France’s National Institute of Health and Medical Research (INSERM). This partnership aims to transform the Rare Disease landscape by joining the efforts of more than 170 partners (public and private organizations) from 37 countries.
About ERDERA
The European Rare Diseases Research Alliance (ERDERA) aims to improve the health and well-being of the 30 million people living with a rare disease in Europe, by making Europe a world leader in Rare Disease (RD) research and innovation, to support concrete health benefits to RD patients, through better prevention, diagnosis and treatment. ERDERA aims to build on past EU-funded projects by developing a robust infrastructure for data and expertise, funding new research, providing training, and translating findings into practical solutions for RD patients. It will also work to align research strategies internationally and nationally.
