Duchenne Patient Academy
Training for patient advocates
The Duchenne Patient Academy can be seen as one of the leading global Duchenne and Becker MD advocacy events. The training aims to equip patient advocates with the tools, knowledge and experience to better represent and serve Duchenne and Becker muscular dystrophy. Topics such as research, care, policy-making, regulations and awareness are discussed.
The training is of particular interest to people affected by Duchenne or Becker muscular dystrophy, patient organizations, researchers and clinicians. Patient advocates do not have to be connected to a patient organization. Duchenne Patient Academy is a collaboration between the World Duchenne Organization and Duchenne Data Foundation.
Suzie-Ann Bakker, program manager: “Each year, we apply the feedback of the alumni to develop the new program. Combined with the insights from clinicians, researchers and companies, we ensure that the topics address the needs of the global community. The agenda, speakers and topics differ each year. People who previously attended the Academy can always learn something new by attending another edition.”