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Duchenne Patient Academy

In 2016, the first Duchenne Patient Academy (DPA) was launched in Athens, Greece. This global patient advocacy initiative was formed by the Duchenne Data Foundation to create a broader and deeper understanding of Duchenne Muscular Dystrophy (DMD) and coordinate the global advocacy strategy of the community. 

Alongside a better understanding of the condition, this yearly series of masterclasses aims to equip patient organisations with the knowledge necessary to become experts on DMD and the advocacy needed to improve the lives of DMD boys and men. The sessions cover a broad range of areas, with the end goal of more effective advocacy in each participant’s home country, while simultaneously strengthening the global Duchenne network.

More information about DPA