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DMD Emergency Program

Local patient organizations and communities are not always equipped with the right tools and support in case of an emergency. This has a severe impact on the families of people living with Duchenne and Becker muscular dystrophy. The DMD Emergency Program was started in 2020 to provide direct aid to patient organizations in a direct emergency. In addition to initial aid, the program aims to provide long lasting support.

The initiative is a collaboration between the Duchenne Data Foundation and the World Duchenne Organization. So far, it has provided support to the Lebanese DMD/BMD community after the Beirut Blast, and is setting up support for the families affected by the Ukrainian conflict.

 

DMD-Emergency-Fund_Ukraine-families

Ukraine conflict

Support to families and local organizations

The entire world community is experiencing hours of great pain due to the ongoing conflict in Ukraine. The conflict has an even greater impact on families who have children with complex diseases such as Duchenne and Becker muscular dystrophy.

The World Duchenne Organization is collecting funds to provide resources and support to patient organizations that are coordinating refugees and local families with Duchenne and Becker muscular dystrophy.

 

Donate for DMD/BMD families affected by the Ukraine conflict

Lebanon

Support after Beirut blast

In the year of 2020 in Lebanon, the effects of the large explosion ‘Beirut Blast’ at the city port and the Covid-19 pandemic resulted in an emergency situation. Many families needed medical equipment to take care of their sons, who suffer from DMD/BMD.

The Duchenne Data Foundation and the World Duchenne Organization set up a support program for local communities that has global supervision through a strategic global capacity building program, starting with the emergency in Lebanon.

Aida Adra, Founding member, LAND for Hope Lebanon

“It was so smooth to handle the donation, and we were so excited to see what we have for our kids, like Christmas gifts. Thank you to everyone who participated in this operation. Proud to be a part and member of the World Duchenne Organization”