on a daily basis
The most important thing for caring for someone with Duchenne is to give them the right type of care regarding age and ambulatory status. There are various perspectives on how to care for someone affected by Duchenne muscular dystrophy. The most important thing is to support and provide them with the right type of care, regarding their age, and whether they are in a wheelchair or not.
Next to physical care (making sure their bones are healthy, you have regular hospital check-ups, and do daily stretches), you also have to think of emotional care. A social worker, psychologist or psychotherapist can assist you with this.
The updated Family Guide is an excellent resource in multiple languages to see what is the best care you can find. The Consensus Guideline For Adult Duchenne Care provides a framework to improve clinical services and multi-disciplinary care for adults living with Duchenne Muscular Dystrophy.