Applications now open for Duchenne Patient Academy 2024
World Duchenne Organization (WDO) and Duchenne Data Foundation (DDF) are thrilled to announce that applications for the Duchenne Patient Academy 2024 are now open for WDO Members. This online training event for Duchenne and Becker (DMD/BMD) patient advocates will take place online on December 6 and 7.
This year we are inviting the new generation of patient advocates who are looking to sharpen their advocacy skills and engage in critical discussions on DMD/BMD. We invite members and aspiring members of the World Duchenne Organization to send in an application.
The Duchenne Patient Academy is a unique opportunity for motivated patient advocates to receive intensive training on key aspects and skills needed to make a meaningful impact in the field. We encourage new advocates interested in understanding research, advocating for access, and improving standards of care for people living with DMD/BMD to apply.
Event details
Duchenne Patient Academy 2024 is featuring several expert speakers who will share their valuable experiences and engage in hands-on exercises. Key topics will include community building, drug development, patient advocacy, Standards of Care, and communication.
- Friday, December 6: 16:00 – 19:00 CET
- Saturday, December 7: 14:00 – 20:00 CET
The Duchenne Patient Academy 2024 is looking for new generation patient advocates, specifically individuals who have just started their advocacy journey. Applicants should be proficient in English to be able to participate meaningfully in the discussions.
Duchenne Patient Academy topics
Apply for Duchenne Patient Academy 2024
To apply, interested individuals can submit an application. It must be accompanied by a signed letter of recommendation from their WDO Member patient organization.
Selected participants can expect a reply mid November.
This event is supported by PTC Therapeutics, Sarepta, Roche, Biomarin, Italfarmaco, Santhera, Solid BioSciences, and Wave Life Sciences.
For questions about the training program or applications, please contact:
Suzie-Ann Bakker
DPA Program Manager
About Duchenne Patient Academy
Duchenne Patient Academy is organized by the Duchenne Data Foundation in collaboration with the World Duchenne Organization. Upon the launch of the first edition in 2018, DPA has trained over 500 patient advocates from 55 countries. Over the course of multiple days, patient representatives receive training on how to successfully advocate for people living with dystrophinopathies.
