1 2 aim

Share4Rare Toolkit

on Patient Advocacy

The Share4Rare Advocacy Toolkit is intended as a living resource for the Share4Rare community. Rather than a homogeneous field, patient advocacy is driven by the needs of the respective patient community and can for this reason span domains as diverse as communication, fundamental research, investment strategies and legal. By definition, it is nearly impossible to cover such diversity in a single person- and toolkits written by advocates for advocates are therefore of particular value to the advocacy community.

The ambition of the Share4Rare advocacy toolkit is to develop a living resource that grows with the needs and interests of the Share4Rare community and that incorporates professional-grade insights, tools and methods in the areas of education, communication, research, management and strategy, together with suitable ‘how-to’ introductions and downloadable templates.