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All events

Duchenne-Konferenz Schweiz

Wir lassen Fachpersonen, Betroffene, Eltern und Geschwister zu Wort kommen und freuen uns auf eine informative Konferenz mit Raum für Gespräche, Austausch und Vernetzung.

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International Muscle-Bone Interaction in Duchenne Muscular Dystrophy Symposium

3rd International Muscle-Bone Interaction in Duchenne Muscular Dystrophy Symposium: Moving beyond the 2018 international standards of care for osteoporosis management.

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Action Duchenne's International Conference 2022

Action Duchenne's International Conference 2022

The theme for this year's conference is 'Educating, enabling and including'; focussing on key areas of Duchenne muscular dystrophy. The two day conference will consist of 4 content streams taking place simultaneously. 

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3rd International FAIR data 'visiting' for Duchenne & Other Rare Diseases

3rd International FAIR data ‘visiting’ for Duchenne & Other Rare Diseases

For the first time, the World Duchenne Organization will team up with RaDiOrg Rare Diseases in Belgium and SMA Europe in Germany to form a wider network of approximately 160 Patient Organizations all interested in how the FAIR principles could make a difference in optimizing the use of patients’ data.

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Duchenne Patient Academy 2022

Duchenne Patient Academy 2022

This year, the 6th edition of Duchenne Patient Academy will take place. The Academy provides online training for Duchenne and Becker muscular dystrophy (DMD/BMD) patient advocates. This year’s theme is ‘Changing Perspectives’ and it will take place on December 1 – 3 2022.

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MENA Organization for Rare Diseases Annual Meeting 2023

MENA Organization for Rare Diseases will have its annual meeting in Dubai from 3 to 5 March 2023. During this three-day conference, experts will deliver the most updated knowledge in presentations and workshops related to rare diseases in various medical fields.

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