September 30, 2020 Online

European Health Forum Gastein 2020

We need to conceptualise new partnership models to purposefully engage with big players and their sometimes misaligned interests with public health agendas.

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October 2, 2020 Online

Biotechnology to bring innovation in the paediatric drug development

EPTRI half-day webinar will include lectures given by researchers participating to EPTRI focused on the innovative approaches available in the paediatric drug development.

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October 5, 2020 Online

Digital Tools for Patient Empowerment and Person-Centred Care

European Patient's Forum workshop for experience sharing and cross-fertilisation around patient empowerment and the changes needed to boost cooperation between stakeholders.

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October 6, 2020 Moscow, Russia

Online symposium on Duchenne Muscular Dystrophy

The largest educational event in Russia for specialists who provide care to adults and children with severe progressive and life-limiting diseases.

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October 12, 2020 Istanbul, Turkey

Quality assurance, variant interpretation and data management in the NGS diagnostic era

Multiple-day training course for laboratory scientists (EBMG registered), clinical geneticists, other medical specialists in training, with a basic knowledge in biology or medicine.

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October 15, 2020 Online

EFGCP & DIA Better Medicines for Children Conference

The future of paediatric medicines: putting patients at the heart of innovation and regulatory science

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October 27, 2020 Online

CHRODIS PLUS Online Conference on Chronic Diseases

Conference illustrating the impact that CHRODIS PLUS has had on public health systems across EU member states over the past 3 years.

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October 29, 2020 Online

Toward Innovative Research Biobanks for Rare Diseases: Overcoming the Challenges

Creating a comprehensive, sustainable ecosystem allowing a virtuous circle between research, care and medical innovation

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November 14, 2020 Online

2020 Action Duchenne Annual Conference

The Conference will be an online event on the weekend of 14/15 November. Plenary and breakout sessions will be easily accessible on-demand for conference attendees.

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November 30, 2020 Online

Duchenne Patient Academy 2020

International advocacy training for Duchenne and Becker patient advocates. More information will follow.

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February 27, 2021 Washington DC, United States

PPMD’S 2021 Advocacy Conference

People with Duchenne and their families use their voice to ensure policy makers understand the urgency and need for federal focus and funding on Duchenne care and research.

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September 10, 2021 Nottwil, Switzerland

Duchenne-Konferenz Schweiz

Wir lassen Fachpersonen, Betroffene, Eltern und Geschwister zu Wort kommen und freuen uns auf eine informative Konferenz mit Raum für Gespräche, Austausch und Vernetzung.

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