Duchenne care information per phase
Generally speaking, there are three disease phases of Duchenne and Becker muscular dystrophy:
- The ambulatory phase is considered as the phase from diagnosis until not being able to walk independently anymore.
- Early loss of ambulation is considered as the phase when you cannot walk anymore, but you can still use your arms.
- Late loss of ambulation is considered the phase when you usually need ventilation and have very limited arm and hand function.
To find the information which is appropriate per phase a person living with Duchenne is in, we published a series of Care Videos. With this, Duchenne care information is becoming accessible for as many people as possible, and more specific for children as well. Each video provides a clear explanation of a different aspect of DMD care. For more info about the videos in the different ages/phases and about how to create the videos in your own language, please visit our special DMD Care website.