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Welcome to WDO

We’ve been connecting the Duchenne and Becker community since 2005, but we’re more than this. Partner with us and you’ll automatically join the global family to improve treatment, quality of life and long-term outlook for all affected by Duchenne and Becker muscular dystrophy.

The World Duchenne Organization is here to support you in every way imaginable: with information about the condition, where to go and what to do for care, research, clinical trials, and advocacy. By doing this, we hope to empower you or your organization to give our little ones the care they deserve. Because that’s what matters to all of us.

Participating in a clinical trial?

Read more information about joining a clinical trial

Make a donation

You will help the Duchenne & Becker community

Event Calendar

PPMD’S 2020 virtual Annual Conference

Each year nearly 700 families from around the world gather at PPMD's Annual Conference to learn the latest progress in the fight to end Duchenne. They also gather for support,…

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World Duchenne Awareness Day 2020

September 7 is World Duchenne Awareness Day. On this day we raise awareness for Duchenne and Becker muscular dystrophy around the globe. As every year, we have a special theme.

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International Summer School on Rare Disease Registries and FAIRification of Data

Multiple-day module on what is needed to create, manage and maintain high quality registries, and how to FAIRify this data, discussing FAIR data management and project planning.

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Duchenne-Konferenz Schweiz

Wir lassen Fachpersonen, Betroffene, Eltern und Geschwister zu Wort kommen und freuen uns auf eine informative Konferenz mit Raum für Gespräche, Austausch und Vernetzung.

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More info?

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