We are happy to announce that the Leonesa Association for Muscular Dystrophy (ALDIM) is joining World Duchenne Organization (WDO). By doing so it enhances its mission to provide vital support and advocacy for individuals affected by Duchenne Muscular Dystrophy (DMD) and related neuromuscular conditions. We spoke with Enrique Perez, the General Director of ALDIM, to delve into the significance of this decision and its potential impact.
History and mission of ALDIM
“ALDIM’s inception traces back to 1990 when Germán Pérez Castillo, himself a Muscular Dystrophy sufferer, founded the organization. Our formal establishment occurred in 1996, with a central goal: to offer physical rehabilitation support to those grappling with this debilitating condition. Over three decades, ALDIM has been dedicated to serving individuals affected by Muscular Dystrophy and other neuromuscular challenges, prioritizing comprehensive care.”
ALDIM adheres to several core values:
- Commitment: We view our work as a personal commitment rather than just a job.
- Professionalism: We are passionate about our work and uphold high-quality standards.
- Humanism: We value every person based on their human condition and natural rights.
- Teamwork: We recognize that synergy is essential to achieving our objectives.
Social initiatives and partnerships
ALDIM is actively engaged in various social initiatives and partnerships, Enrique explains. “First, we are one of the five associations that comprise the National Network of Associations for Duchenne Muscular Dystrophy. Secondly, we are part of the “Red Enlazando México” group, focused on generating actions for public policies. And lastly, we participate in the “Institutions in favor of Disability” network, organizing the annual “Carrera Inclúyeme contigo” event, now in its seventh edition.
We also collaborate with institutions such as the University of La Salle Bajío, Municipal and State DIF, SIENNA Hospital, León’s High Specialization Hospital, and the University of Guanajuato for special projects and student training. Additionally, we actively engage in municipal and state advisory councils for crime prevention, women’s and children’s safety in Guanajuato, and municipal sports councils.”
Services for patients
“ALDIM provides a comprehensive array of services for individuals with Muscular Dystrophy and neuromuscular disorders, including specialized medical consultations covering physical rehabilitation, neuromuscular concerns, sports medicine, and general medicine. They also offer physical and pulmonary rehabilitation, psychological support, and dental care. Funding for these services is sourced from service fees, donations from individuals and organizations, and participation in state funding initiatives.”
ALDIM joining World Duchenne Organization
“This global organization plays a crucial role in the lives of those living with this devastating disease. Here’s why being part of the WDO is so important:
Becoming a WDO Member is a significant and invaluable decision. This global organization plays a crucial role in the lives of those living with this devastating disease. First and foremost, the WDO serves as a vital support network for people with DMD and their families, offering a community of individuals who can provide mutual support in challenging times. Additionally, the WDO plays a big role in educating and raising awareness about DMD, providing up-to-date information and advocating for policies and services to improve the quality of life for those with the condition. Furthermore, the WDO serves as a channel for research and the advancement of innovative therapies, allowing individuals and families to participate in clinical trials and contribute to scientific progress in the quest for a cure or effective treatments”
Enrique concludes: “In summary, being a part of the World Duchenne Organization is essential for those facing Duchenne Muscular Dystrophy. It offers support, information, advocacy, research, and the opportunity to make a difference in the lives of people with DMD. Being part of this organization not only provides individual help but also contributes to the collective goal of improving the quality of life and finding a cure for this disease. ALDIM’s membership in the WDO is a testament to our commitment to this cause.”
We extend our congratulations to ALDIM joining World Duchenne Organization, and we look forward to the positive impact this partnership with the World Duchenne Organization will have on the global community.