Care Archives • World Duchenne

Showing all 25 results

The Robert Jones and Agnes Hunt Orthopaedic Hospital in Oswestry Accredited by ADC Program

The Robert Jones and Agnes Hunt Orthopaedic Hospital in Oswestry is the first UK center to receive the accreditation for pediatric and adult care.

Duchenne Care Conference 2024 successfully concluded, recordings available

The recordings of Duchenne Care Conference 2024 are now available. It provides a platform for sharing the latest updates on Duchenne MD care.

Duchenne Care Conference 2024: Registrations are open

Registrations for the Duchenne Care Conference 2024 are now open. Healthcare professionals and patient organization representatives are invited to join this online educational event.

Duchenne Care Conference 2024: Save the Date

After our successful Duchenne Care Conference 2023, when hundreds of healthcare professionals from more than 60 countries around the globe…

New Accredited Duchenne Center: Instituto Nacional de Rehabilitacion Luis Guillermo Ibarra, Mexico

We are thrilled to announce that the Instituto Nacional de Rehabilitacion Luis Guillermo Ibarra, in Mexico City, Mexico becomes the first hospital…

University Clinical Center in Gdansk, Poland Achieves Accredited Duchenne Center Status

We are thrilled to announce that the University Clinical Center (UCC) in Gdansk, Poland, becomes the first hospital to be…

World Duchenne Organization Concludes Successful Duchenne Care Conference 2023

The Duchenne Care Conference 2023 is a platform to learn, share and connect to improve the lives of people living with dystrophinopathies.

Duchenne Care Conference 2023 Speakers and Topics

Agenda & Speakers for Duchenne Care Conference 2023

The agenda and speakers for Duchenne Care Conference 2023 features an array of expert speakers in Duchenne and Becker research and care.

Picture of a young boy who just received a vaccination. He is sitting on his mother's lap and is receiving a band-aid from a healthcare professional.

Why Vaccinations are Crucial for People with Duchenne and Becker Muscular Dystrophy

Why vaccinations are crucial for people with Duchenne and Becker Muscular Dystrophy: A reminder during World Immunization Week.

Register for Duchenne Care Conference 2023

Duchenne Care Conference 2023 focuses on the progress we have made after the 2018 Care Considerations were published in the Lancet.

ADC open to accept applications for Duchenne Centers Accreditation

The Accredited Duchenne Centers Program is designed to achieve worldwide uniform and up-to-date care for everyone living with Duchenne muscular dystrophy.

2022 Wrap-up: Activities of World Duchenne Organization

Elizabeth Vroom looks back on 2022, listing all activities of the World Duchenne Organization, and carefully draws a rough outline for 2023.

Dr Imelda de Groot award 2022 applications open

Dr Imelda de Groot award for improving care in Duchenne

The ‘Dr Imelda de Groot’ is an annual award and meant to stimulate persons to improve care for persons with Duchenne muscular dystrophy (DMD).

#apaperaday: Perioperative Care for Patients with Neuromuscular Disorders in the Netherlands - A Questionnaire Study Among Anaesthesiologists, Neurologists and Clinical Geneticists

Perioperative Care for Patients with Neuromuscular Disorders in the Netherlands

#apaperaday: Cardiac care of children with dystrophinopathy and females carrying DMD-gene variations

Cardiac care of children with dystrophinopathy and females carrying DMD-gene variations

#apaperaday special: Cardiac Care for Female Carriers of Duchenne

Cardiac Care for Female Carriers of Duchenne: 2/3 mothers with a child with Duchenne is at risk of developing dilated cardiomyopathy.

Duchenne Care Conference 2022

During the Duchenne Care Conference 2022, top experts share their experience on specific topics of Adult Duchenne Care.

Consensus Guidelines for Adult Duchenne Care

The Journal of Neuromuscular Diseases published the consensus guidelines for adult Duchenne care.

Duchenne Care Conference 2021

During the Duchenne Care Conference, top experts share their experience on specific topics of Duchenne (and Becker) care.

Register for Duchenne Care Conference 2021

Online Duchenne Care Conference June 1 - 4 for WDO Members where global experts share their knowledge on specific care topics.

Democratizing access to information and care for Duchenne MD

WDO receives a grant to empower patients and parents in developing countries affected by Duchenne Muscular Dystrophy

Care in times of COVID

Over the past months, we have been receiving an increasing number of questions about the risks of returning, or not…

Translating DMD-Care Videos

Previous World Duchenne Awareness Day, we published a series of educational videos to make Duchenne Care information accessible for as…

Duchenne Care Videos

There is a compelling need to ensure that wherever they are in the world, individuals affected by Duchenne Muscular Dystrophy…

Duchenne Care Conference 2018

At Duchenne Care Conference 2018, global stakeholders are joining the discussion around the implementation of the latest Standards of Care.

Go back to all news

Sections

Results

News

The Robert Jones and Agnes Hunt Orthopaedic Hospital in Oswestry Accredited by ADC Program

Duchenne Care Conference 2024 successfully concluded, recordings available

Duchenne Care Conference 2024: Registrations are open

Duchenne Care Conference 2024: Save the Date

New Accredited Duchenne Center: Instituto Nacional de Rehabilitacion Luis Guillermo Ibarra, Mexico

University Clinical Center in Gdansk, Poland Achieves Accredited Duchenne Center Status

World Duchenne Organization Concludes Successful Duchenne Care Conference 2023

Agenda & Speakers for Duchenne Care Conference 2023

Why Vaccinations are Crucial for People with Duchenne and Becker Muscular Dystrophy

Register for Duchenne Care Conference 2023

ADC open to accept applications for Duchenne Centers Accreditation

2022 Wrap-up: Activities of World Duchenne Organization

Dr Imelda de Groot award for improving care in Duchenne

#apaperaday: Perioperative Care for Patients with Neuromuscular Disorders in the Netherlands - A Questionnaire Study Among Anaesthesiologists, Neurologists and Clinical Geneticists

#apaperaday: Cardiac care of children with dystrophinopathy and females carrying DMD-gene variations

#apaperaday special: Cardiac Care for Female Carriers of Duchenne

Duchenne Care Conference 2022

Consensus Guidelines for Adult Duchenne Care

Duchenne Care Conference 2021

Register for Duchenne Care Conference 2021

Democratizing access to information and care for Duchenne MD

Care in times of COVID

Translating DMD-Care Videos

Duchenne Care Videos

Duchenne Care Conference 2018

Givinostat – How does it work and what do we know so far for Duchenne?

White Paper Released: Newborn Screening for Duchenne Muscular Dystrophy – The Time is Now

World Duchenne Awareness Day 2024 granted patronage by European Parliament