Dr. Imelda de Groot Award 2026: applications now open
The Dr. Imelda de Groot Award is an incentive prize for care and innovation, initiated by Duchenne Parent Project Netherlands.…
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Registration open for Duchenne Care Conference 2026
We invite healthcare professionals and patient organization representatives to attend the Duchenne Care Conference 2026, taking place online on May 26…
Duchenne Care Conference 2025 highlights advances in clinical management of DMD and BMD
The Duchenne Care Conference 2025, organized by the World Duchenne Organization, took place virtually on May 26–27, 2025. It gathered…
Registration is now open for the Duchenne Care Conference 2025
The World Duchenne Organization is thrilled to announce that registrations are now open for the Duchenne Care Conference 2025. The…
Care Guidelines for Becker muscular dystrophy now available
On September 14, the Becker Care Guidelines for the Clinical Management of Becker Muscular Dystrophy (BMD) were officially presented at…
The Robert Jones and Agnes Hunt Orthopaedic Hospital in Oswestry Accredited by ADC Program
The Robert Jones and Agnes Hunt Orthopaedic Hospital in Oswestry is the first UK center to receive the accreditation for pediatric and adult care.
Duchenne Care Conference 2024 successfully concluded, recordings available
The recordings of Duchenne Care Conference 2024 are now available. It provides a platform for sharing the latest updates on Duchenne MD care.
Duchenne Care Conference 2024: Registrations are open
Registrations for the Duchenne Care Conference 2024 are now open. Healthcare professionals and patient organization representatives are invited to join this online educational event.
Duchenne Care Conference 2024: Save the Date
After our successful Duchenne Care Conference 2023, when hundreds of healthcare professionals from more than 60 countries around the globe…
New Accredited Duchenne Center: Instituto Nacional de Rehabilitacion Luis Guillermo Ibarra, Mexico
We are thrilled to announce that the Instituto Nacional de Rehabilitacion Luis Guillermo Ibarra, in Mexico City, Mexico becomes the first hospital…
University Clinical Center in Gdansk, Poland Achieves Accredited Duchenne Center Status
We are thrilled to announce that the University Clinical Center (UCC) in Gdansk, Poland, becomes the first hospital to be…
World Duchenne Organization Concludes Successful Duchenne Care Conference 2023
The Duchenne Care Conference 2023 is a platform to learn, share and connect to improve the lives of people living with dystrophinopathies.
Agenda & Speakers for Duchenne Care Conference 2023
The agenda and speakers for Duchenne Care Conference 2023 features an array of expert speakers in Duchenne and Becker research and care.
Why Vaccinations are Crucial for People with Duchenne and Becker Muscular Dystrophy
Why vaccinations are crucial for people with Duchenne and Becker Muscular Dystrophy: A reminder during World Immunization Week.
Register for Duchenne Care Conference 2023
Duchenne Care Conference 2023 focuses on the progress we have made after the 2018 Care Considerations were published in the Lancet.
ADC open to accept applications for Duchenne Centers Accreditation
The Accredited Duchenne Centers Program is designed to achieve worldwide uniform and up-to-date care for everyone living with Duchenne muscular dystrophy.
2022 Wrap-up: Activities of World Duchenne Organization
Elizabeth Vroom looks back on 2022, listing all activities of the World Duchenne Organization, and carefully draws a rough outline for 2023.
Dr Imelda de Groot award for improving care in Duchenne
The ‘Dr Imelda de Groot’ is an annual award and meant to stimulate persons to improve care for persons with Duchenne muscular dystrophy (DMD).
#apaperaday: Perioperative Care for Patients with Neuromuscular Disorders in the Netherlands - A Questionnaire Study Among Anaesthesiologists, Neurologists and Clinical Geneticists
Perioperative Care for Patients with Neuromuscular Disorders in the Netherlands
#apaperaday: Cardiac care of children with dystrophinopathy and females carrying DMD-gene variations
Cardiac care of children with dystrophinopathy and females carrying DMD-gene variations
#apaperaday special: Cardiac Care for Female Carriers of Duchenne
Cardiac Care for Female Carriers of Duchenne: 2/3 mothers with a child with Duchenne is at risk of developing dilated cardiomyopathy.
Duchenne Care Conference 2022
During the Duchenne Care Conference 2022, top experts share their experience on specific topics of Adult Duchenne Care.
Consensus Guidelines for Adult Duchenne Care
The Journal of Neuromuscular Diseases published the consensus guidelines for adult Duchenne care.
Duchenne Care Conference 2021
During the Duchenne Care Conference, top experts share their experience on specific topics of Duchenne (and Becker) care.
Register for Duchenne Care Conference 2021
Online Duchenne Care Conference June 1 - 4 for WDO Members where global experts share their knowledge on specific care topics.
Democratizing access to information and care for Duchenne MD
WDO receives a grant to empower patients and parents in developing countries affected by Duchenne Muscular Dystrophy
Care in times of COVID
Over the past months, we have been receiving an increasing number of questions about the risks of returning, or not…
Translating DMD-Care Videos
Previous World Duchenne Awareness Day, we published a series of educational videos to make Duchenne Care information accessible for as…
Duchenne Care Videos
There is a compelling need to ensure that wherever they are in the world, individuals affected by Duchenne Muscular Dystrophy…
Duchenne Care Conference 2018
At Duchenne Care Conference 2018, global stakeholders are joining the discussion around the implementation of the latest Standards of Care.
