Events Archives - World Duchenne

Showing all 16 results

Meeting on Data Sharing for Duchenne

Step by Step towards Duchenne FAIR data In 2019, we made a commitment towards making Duchenne data suitable for sharing…

International congress on the effects of COVID-19 on people with rare diseases

On the second week of November, an international conference will take place virtually in order to present the patient registry…

Report: World Muscle Society (WMS) 2020 International Congress

This year the 25th edition of the World Muscle Society (WMS) 2020 International Congress, a congress where the worldwide important…

Duchenne Patient Academy 2020: Applications now open

We are delighted to announce that Duchenne Patient Academy, supported by the World Duchenne Organization, is returning for the fourth…

Attention to mental well-being in DMD/BMD families

Living with Duchenne and Becker muscular dystrophy (DMD and BMD) has a profound impact on the lives and mental health…

Duchenne and the Brain

An online program about brain involvement in Duchenne and Becker muscular dystrophy will launch on World Duchenne Awareness Day. This…

#WDAD2020: Together we are stronger

The current Corona pandemic is profoundly impacting our daily lives. It changes the way we spend time, and it alters…

WDAD 2020: Duchenne and the brain

Every year on September 7, we celebrate World Duchenne Awareness Day. On this day, we raise awareness for Duchenne and…

ECRD 2020 Online Conference – registration opened

EURORDIS, together with Orphanet and Inserm are hosting their 10th European Conference on Rare Diseases & Orphan Products (ECRD) on…

Autism in Duchenne muscular dystrophy: how to detect and what to do

Thursday April 2 is World Autism Awareness Day. Then, the world raises awareness about people with Autism Spectrum Disorder (ASD)…

Holiday wishes from WDO

2019 was a year where things have been given and taken from us. With this community letter, we hope to…

Duchenne Patient Academy trains 80 patient advocates from 37 countries

Three years ago, the first Duchenne Patient Academy (DPA) was launched in Athens, Greece. This global patient advocacy initiative was…

WDO Member Meeting 2019

The first WDO Member Meeting of 2019 was a great success. Over 50 participants from 24 countries gathered on February…

WDO Member Meeting 2019

During the annual Duchenne Conference organized by Parent Project Onlus that takes place in Rome on Feb 15-17, the World Duchenne Organization hosts a meeting…

Duchenne Data Foundation presents: Duchenne Academy

Join patient groups, experts and companies from different countries of the world over 4 days at the Duchenne Academy Friday…

Duchenne Care Conference

Friday September 7, countries all over the world organize events concerning the topic Standards of Care for Duchenne Muscular Dystrophy.…

Go back to all news

Sections

Results

News

Meeting on Data Sharing for Duchenne

International congress on the effects of COVID-19 on people with rare diseases

Report: World Muscle Society (WMS) 2020 International Congress

Duchenne Patient Academy 2020: Applications now open

Attention to mental well-being in DMD/BMD families

Duchenne and the Brain

#WDAD2020: Together we are stronger

WDAD 2020: Duchenne and the brain

ECRD 2020 Online Conference – registration opened

Autism in Duchenne muscular dystrophy: how to detect and what to do

Holiday wishes from WDO

Duchenne Patient Academy trains 80 patient advocates from 37 countries

WDO Member Meeting 2019

WDO Member Meeting 2019

Duchenne Data Foundation presents: Duchenne Academy

Duchenne Care Conference

Caring for people with Duchenne, Becker and other MD's during COVID-19

Autism in Duchenne muscular dystrophy: how to detect and what to do

The experience as mother of a Duchenne adult who recently turned 30