2014: Many Faces of Duchenne
For the first edition of the World Duchenne Awareness Day in 2014, it was essential to explain to the civil…
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Family: the heart of care - WDAD2025 Documentary
“Family: the heart of care” The documentary of World Duchenne Organization launched on World Duchenne Awareness Day Duchenne muscular dystrophy…
European Parliament patronage for WDAD
World Duchenne Awareness Day has received the patronage of the European Parliament, a recognition of great significance that highlights the…
Trailer of the WDAD 2025 Documentary – Family, the Heart of Care
“Family means everyone helps each other, everyone is there for each other, even in hard times.” Family means so much.…
2025: Family: the heart of care
With this year’s theme, World Duchenne Awareness Day (WDAD) highlights the role of family members for people living with Duchenne…
The World Duchenne Awareness Day 2025 theme is “Family: the heart of care”
With this year’s theme, World Duchenne Awareness Day (WDAD) highlights the role of family members for people living with Duchenne…
Today is World Duchenne Awareness Day 2024
Rome, 7 September 2024 – Today is World Duchenne Awareness Day 2024! With this year’s theme ‘Raise your voice for…
A message from Pope Francis for World Duchenne Awareness Day
The World Duchenne Organization is grateful to receive a message from Pope Francis. This year, he is once again giving…
Trailer for WDAD 2024 documentary out now
The trailer for the World Duchenne Awareness Day 2024 documentary is now live. The documentary, titled 'Raise your voice for…
A message from Elizabeth Vroom: Raise your voice for Duchenne
On September 7th, we will celebrate the 11th World Duchenne Awareness Day (WDAD), a special day recognized globally. Since we…
World Duchenne Awareness Day 2024 granted patronage by European Parliament
Amsterdam, 18 June 2024 — The European Parliament has officially granted its patronage to World Duchenne Awareness Day 2024, which…
2024: Raise Your Voice for Duchenne
The World Duchenne Awareness Day 2023 theme is 'Duchenne: Breaking Barriers' promoting social inclusion for people with dystrophinopathies.
United Nations Officially Designates September 7 as World Duchenne Awareness Day
The United Nations has marked a momentous milestone for the global rare disease community by officially designating September 7th as…
Breaking Barriers: The story of Lizanne Schreur
Lizanne Schreur (23) is a woman living with Duchenne muscular dystrophy (DMD), a condition that predominantly affects males. In this…
WDAD Documentary: Breaking Barriers
The official documentary for World Duchenne Awareness Day 2023 is now live! The WDAD Documentary: Breaking Barriers is directed by…
Organize an Event or Conference
World Duchenne Awareness Day, observed on September 7, presents a great opportunity for patient advocacy groups and patient organizations to…
Illuminate a landmark
Illuminate a landmark for World Duchenne Awareness Day. Show your solidarity and join patient organizations in creating a wave of…
2023: Duchenne - Breaking Barriers
The World Duchenne Awareness Day 2023 theme is 'Duchenne: Breaking Barriers' promoting social inclusion for people with dystrophinopathies.
#apaperaday special: How much dystrophin is needed for survival and function
Today’s pick is one of my own papers by van Putten et al in FASEB journal doi 10.1096/fj.12-224170. Here we…
#apaperaday special: Needs of mothers caring for children with Duchenne
Today’s pick for the Women and Duchenne theme of World Duchenne Awareness Day focuses on female caregivers (usually mothers) of…
#apaperaday special: Why some Duchenne carriers have symptoms
Women and Duchenne theme continued with another paper trying to elucidate why some female carriers have symptoms and others have…
#apaperaday special: Cause of manifesting Duchenne carriers
Today and tomorrow we dive into the cause of manifesting carriers starting with a paper by Soltanzadeh et al in…
#apaperaday special: Cardiac Care for Female Carriers of Duchenne
Today’s pick in #apaperaday “Women and Duchenne” special is a letter to the editor by Wang et al in the…
#apaperaday special: Duchenne in a female
Today we kick off with a paper from the Journal of Medical Genetics by Lindenbaum et al from 1979 on…
Official WDAD2022 event: Women and Duchenne
Join the educational event on Women and Duchenne that will launch on September 7, 15:00 CEST. This event is for…
Women in Duchenne
Why for World Duchenne Awareness Day 2022, women are in the spotlight. In Duchenne and Becker Muscular Dystrophy the spotlight…
2022: Women & Duchenne
WORLD DUCHENNE AWARENESS DAY 2022 September 7 is World Duchenne Awareness Day. On this day we raise awareness for Duchenne…
Adult Life & Duchenne online event
On 7 September 2021, the World Duchenne Organization hosted an online event on Adult Life & Duchenne. The event gathered…
World Duchenne Awareness Day highlights a year-round effort to improve adult life in Duchenne
On 7 September 2021, many activities around the world were organized on the occasion of World Duchenne Awareness Day. Awareness-raising…
Consensus Guideline for Adult Duchenne Care
Today on World Duchenne Awareness Day, the Journal of Neuromuscular Diseases published the consensus guideline for adult Duchenne care. The…
