A message from Pope Francis for World Duchenne Awareness Day
The World Duchenne Awareness Day is grateful to receive a message from Pope Francis. This year, he is once again…
Showing all 22 results
#SPREADTHEWORD for World Duchenne Awareness Day
Today, the official World Duchenne Awareness Day 2021 promo video is launched. This video marks the start of the global…
Online event on Adult Life & Duchenne
The World Duchenne Organization is organizing an online educational event on Adult Life & Duchenne. The free event on September…
2021: Adult Life & Duchenne
WORLD DUCHENNE AWARENESS DAY 2021 September 7 is World Duchenne Awareness Day. On this day we raise awareness for Duchenne…
World Duchenne Awareness Day 2020 recap
Monday September 7 marked the 6th edition of World Duchenne Awareness Day. This international day dedicated to raise awareness about…
ENMC workshop report: Brain dystrophin in muscular dystrophy
Thanks to the European NeuroMuscular Centre, last November a workshop on the role of brain dystrophin in muscular dystrophy; Implications…
Join the online program on Duchenne and the Brain
On September 7, we are launching a live online program for everyone interested in Duchenne care and research. Experts are…
Online program for brain involvement in Duchenne and Becker muscular dystrophy
An online program about brain involvement in Duchenne and Becker muscular dystrophy will launch on World Duchenne Awareness Day. This…
WDAD receives letter of support from Pope Francis
Just like previous years, Pope Francis is supporting the effort of World Duchenne Awareness Day to raise awareness for Duchenne…
Official WDAD 2020 promo video launched
The Covid-19 pandemic has a strong impact on the life of every single individual and family, modifying our time and…
2020: Duchenne and the Brain
Duchenne and the Brain September 7 is World Duchenne Awareness Day. On this day we raise awareness for Duchenne and…
WDAD receives a message from Pope Francis
Once again, on the occasion of the World Duchenne Awareness Day, Pope Francis, through the president of the organisation Adm…
2019: Nutrition in DMD
Nutrition in DMD On World Duchenne Awareness Day, we not only want to raise awareness among the general public about…
WDAD receives high patronage of the European Parliament
World Duchenne Awareness Day 2019 will be celebrated under the High Patronage of the European Parliament It is estimated that…
How you can bring your light to Duchenne families
With World Duchenne Awareness Day approaching, there are so many ways you can get involved in raising awareness on this…
7 tips for effective event communication
"If a tree falls in a forest and no one is around to hear it, does it make a sound?".…
5 steps you can take to raise awareness
Share the video + press release Share the Bring Your Light For World Duchenne Awareness Day video on social media, television,…
Duchenne Family Guide
Thanks to the collaboration of four not-for-profit organizations – the Muscular Dystrophy Association, Parent Project Muscular Dystrophy, Treat-NMD and the World Duchenne Organization – a thoroughly…
2015: Duchenne Stories
A designer, a photographer, a writer and many more ideas came to the mind of the Duchenne boys when, during…
2016: Early Diagnosis
The third edition of the World Duchenne Awareness day was focused on early diagnosis: identifying and communicating early signs of…
2017: Duchenne Dreams
A designer, a photographer, a writer and many more ideas came to the mind of the Duchenne boys when, during…
2018: Standards of Care
In 2018, the WDAD theme was Standards of Care. There is a compelling need to ensure that wherever they are…
