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World Duchenne Organization honored for outstanding achievement in rare diseases

Dubai, UAE – Today at the MENA Organization for Rare Diseases Conference, Suzie-Ann Bakker accepted an award on behalf of the World Duchenne Organization for their outstanding achievement in rare diseases. The award was presented by Sheikh Nahayan Mabarak Al Nahayan, cabinet member and minister of tolerance and coexistence.

The World Duchenne Organization is dedicated to improving the lives of those affected by Duchenne and Becker muscular dystrophy, two rare neuromuscular diseases. Our work includes connecting the global community, raising awareness, and advocating for improved access to treatment and care.

Nicoletta Madia, Community Coordinator of the World Duchenne Organization, expressed her gratitude for the recognition, stating, “We are honored to receive this award and grateful for the support and recognition of our work. Our organization remains committed to making a difference in the lives of those affected by rare diseases and in particular Duchenne and Becker MD. We look forward to continuing to work towards a brighter future.”

Several other outstanding achievement awards were presented. One of the other awardees was Abdulla Alsoori Alzaabi, Founder & Chairman of Yes2MyGiving and living with Duchenne Muscular Dystrophy.

The MENA Organization for Rare Diseases Conference is an event bringing together researchers, clinicians, patient advocates, and policymakers to discuss the latest advances in rare disease research, treatment, and care. The conference is taking place in Dubai and featured presentations from leading experts in their field as well as family meetings.