#apaperaday special: Duchenne in a female
Duchenne in a female: Authors report a girl who at 5 years of age showed all the signs and symptoms of Duchenne.
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#apaperaday special: Duchenne in a female
Today we kick off with a paper from the Journal of Medical Genetics by Lindenbaum et al from 1979 on…
Official WDAD2022 Event: Women and Duchenne
Join the Official WDAD2022 Event on Women and Duchenne that will launch on September 7, 15:00 CEST. This event is…
Webinar: BIND Studie informatie voor families in Nederland
Een webinar voor gezinnen in Nederland die mee willen doen aan het BIND-onderzoek naar leer- en gedragsuitdagingen in Duchenne en Becker.
Official WDAD2022 event: Women and Duchenne
Join the educational event on Women and Duchenne that will launch on September 7, 15:00 CEST. This event is for…
International training for Duchenne patient advocates
This year, the 6th edition of Duchenne Patient Academy will take place. The Academy provides online training for Duchenne and…
Women in Duchenne
Why for World Duchenne Awareness Day 2022, women are in the spotlight. In Duchenne and Becker Muscular Dystrophy the spotlight…
Women in Duchenne
Why for World Duchenne Awareness Day 2022, women are in the spotlight. In Duchenne and Becker Muscular Dystrophy the spotlight…
Duchenne Vietnam first WDO Aspiring Member
Duchenne Vietnam successfully applied for the WDO Aspiring Membership, joining the World Duchenne Organization.
Monthly #apaperaday wrap-up: June 2022
Prof. Annemieke Aartsma-Rus is taking on a challenge by reading and commenting on a paper a day. See below the overview of June 2022.
3rd International FAIR data 'visiting' for Duchenne & Other Rare Diseases
How will FAIR optimize the use of patient data? The 3rd International FAIR data 'visiting' for Duchenne & Other Rare Diseases is November 22.
Prof Aartsma-Rus' Clinical Trial Highlights of PPMD Conference 2022
Professor Aartsma-Rus shares her highlights of the PPMD Conference 2022 that was taking place June 23-26 in Phoenix Arizona.
Monthly #apaperaday wrap-up: May 2022
Prof. Annemieke Aartsma-Rus is taking on a challenge by reading and commenting on a paper a day. See below the overview of May 2022.
Webinar: BIND Study information for UK Families
BIND researchers from the London site share the study information to interested UK Duchenne and Becker Muscular Dystrophy (DMD/BMD) families.
Duchenne Care Conference 2022
During the Duchenne Care Conference 2022, top experts share their experience on specific topics of Adult Duchenne Care.
2022: Women & Duchenne
WORLD DUCHENNE AWARENESS DAY 2022 September 7 is World Duchenne Awareness Day. On this day we raise awareness for Duchenne…
Dr Imelda de Groot Award 2022 applications now open
The Dr Imelda de Groot Award stimulates researchers and clinicians to develop activities in the Duchenne and Becker muscular dystrophy.
Monthly #apaperaday wrap-up: April 2022
Prof. Annemieke Aartsma-Rus is taking on a challenge by reading and commenting on a paper a day. See below the overview of April 2022.
Pfizer CIFFREO Phase 3 ambulatory trial re-started
The clinical hold on Pfizer CIFFREO Phase 3 ambulatory trial is lifted. They are now working to activate U.S. trial sites.
Relief Ukraine: Tool to trace Ukrainian patients’ needs of medicines
Relief Ukraine connects patients with chronic diseases with the organizations responsible for distributing aid and support.
3rd International Muscle-Bone Interaction in Duchenne Muscular Dystrophy Symposium
Online symposium November 7 & 14: Moving beyond the 2018 minimum international standards of care for osteoporosis management.
Розтяжка та вправи при м’язовій дистрофії Дюшенна
Розтяжка та вправи при м’язовій дистрофії Дюшенна.
Live Feed: Emergency situation in Ukraine for Duchenne and Becker MD families
The World Duchenne Organization is close to families affected by Duchenne and Becker MD in Ukraine. We urge Ukrainian families to contact us.
Monthly #apaperaday wrap-up: March 2022
Prof. Annemieke Aartsma-Rus is taking on a challenge by reading and commenting on a paper a day. See below the overview of March 2022.
On the run with the Duchenne
Ivanna, Max and Mark were fleeing to Poland. They found a welcome in Prague, thanks to global help of Duchenne patient organizations.
Monthly #apaperaday wrap-up: February 2022
Prof. Annemieke Aartsma-Rus is taking on a challenge by reading and commenting on a paper a day. See below the overview of February 2022.
The strength of the fragile people: Duchenne and Becker MD in Ukraine during the war
The World Duchenne Organization activated the DMD Emergency program for the victims of the Ukrainian conflict.
2nd International Conference on Rare Diseases
The 2nd International Conference on Rare Diseases (March 1-2) is themed “The Balancing Act between Equity and Sustainability".
Research Summary: Italian Conference on Duchenne and Becker Muscular Dystrophy
Prof. Aartsma-Rus’ personal highlights of the 2022 International Conference on Duchenne and Becker Muscular Dystrophy research updates.
WDO Aspiring Membership
The WDO Aspiring Membership is created for patient groups that are interested, but not eligible to become a full member.
