This year, the 6th edition of Duchenne Patient Academy will take place. The Academy provides online training for Duchenne and Becker muscular dystrophy (DMD/BMD) patient advocates. This year’s theme is ‘Changing Perspectives’ and it will take place on December 1 – 3 2022.
Over the course of 3 days, DMD and BMD patient advocates will listen to speakers and attend panel discussions moderated by experts in their respective fields. As with last year, attendees have the opportunity to become involved in the dialogue and share their experiences.
Duchenne Patient Academy aims to inspire and equip patient advocates to become change makers and build a better future for people living with dystrophinopathies. This year the program is designed to provide various perspectives on certain topics related to science, care and advocacy. By doing so, participants gain a broader understanding of the challenges, and possible solutions.
Duchenne Patient Academy 2022
Suzie-Ann Bakker, program manager: “Each year, we apply the feedback of the alumni to develop the new program. Combined with the insights from clinicians, researchers and companies, we ensure that the topics address the needs of the global community. The agenda, speakers and topics differ each year. People who previously attended the Academy can always learn something new by attending Duchenne Patient Academy 2022.”
The Academy is a collaboration between the World Duchenne Organization and Duchenne Data Foundation. More information on the agenda and how to apply will be published mid-September. Should you have any questions or suggestions, please contact Suzie-Ann Bakker.
About Duchenne Patient Academy
The Duchenne Patient Academy sets a strong advocacy base for the DMD/BMD patient community. Since its launch in 2017, this program for Duchenne and Becker MD patient advocates has trained over 500 patient advocates in 52 countries. The Academy connects leading experts in their fields in an intensive training and capacity building program. The aim of the Academy is to contribute a unified and strong voice to coordinate the global advocacy strategy of the community.