Live/ COVID-19: Coronavirus and Duchenne & Becker muscular dystrophy
A regularly updated news feed on the COVID-19 outbreak with relevant information for Duchenne and Becker muscular dystrophy. 2021 March…
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The position of neuromuscular patients in Shared-Decision-Making
In 2018, the European Neuromuscular Centre (ENMC) held a special meeting dedicated to the position of neuromuscular patients in Shared-Decisino-making…
VISION-DMD Working Group Meeting
Athens, 6 and 8 December 2019 – The Vision-DMD Working Group Meeting organized by the World Duchenne Organization, preceded the…
Symposium On Muscle-Bone Interaction In DMD
21st June 2019 St Virgil Conference Centre, Salzburg, Austria On the 21st of June 2019 a symposium on muscle-bone interaction in…
Highlights on Data sharing for Duchenne meeting
21-22 March 2019, Level Eleven – Amsterdam, the Netherlands Data is one of the few technologies that becomes of greater…
WDO Member Meeting 2019
The first WDO Member Meeting of 2019 was a great success. Over 50 participants from 24 countries gathered on February…
Update on Duchenne UK’s survey and workshop to discuss the use of re-purposed or off label medicines
Last month, Duchenne UK hosted a workshop to discuss the use of re-purposed or off label medicines. We conducted a survey…
PPMD Publishes 10 Year Registry Report
PPMD is excited to announce the release of the Ten Year Registry Report. This report is the culmination of data…
PPMD Duchenne Compass Meeting report
The Duchenne Patient-Focused Compass Meeting was held as part of FDA’s Patient-Focused Drug Development (PFDD) initiative. As an externally led…
PPMD Meeting Update: Inflammation in Duchenne
Last month, PPMD convened a day and half meeting – Inflammation in Duchenne: Current and New Treatment Strategies – to…
AAV Microdystrophin gene therapy for DMD
With the courtesy of European Neuromuscular Centre (ENMC), please find here the lay reports of the ENMC workshops related to…
Updated Family Guide for DMD
Duchenne Muscular Dystrophy (Duchenne) is a rare genetic (inherited) disease defined by muscle weakness that gets progressively worse over time…
Duchenne Care Conference 2018
At Duchenne Care Conference 2018, global stakeholders are joining the discussion around the implementation of the latest Standards of Care.
Share4Rare Patient-Powered Co-Design Workshop
Brussels, Belgium. This Monday, another successful Share4Rare workshop was held in Brussels, organized by The Synergist. With participants from over 6…
Bone Protective Therapy in Duchenne MD
With the courtesy of European Neuromuscular Centre (ENMC), please find here the lay reports of the ENMC workshops related to…
Duchenne Parent Project congress “Duchenne and the brain”
The annual congress of the Duchenne Parent Project, the Netherlands, was this year held in Heeze, the Netherlands and focused…
First WDO Community Advisory Board meeting
The World Duchenne Organization is happy to announce their first Duchenne Community Advisory Board Meeting (under the Eurordis EUROCAB initiative) from…
Workshop Nutrition in Duchenne muscular dystrophy
From 16th to 18th March 2018 a workshop about nutrition in Duchenne muscular dystrophy (DMD) was held in Zaandam, the Netherlands,…
XVI International conference on Duchenne and Becker muscular dystrophy
On the 17th and 18th of February 2018, the annual international congress for Duchenne and Becker muscular dystrophy was held in Rome,…
Validated and Qualified Biomarkers for DMD Therapy Development
With the courtesy of European Neuromuscular Centre (ENMC), please find here the lay reports of the ENMC workshops related to…
