Fatigue in young people with Duchenne muscular dystrophy
El-Aloul B, Speechley KN, Wei Y, Wilk P, Campbell C. Fatigue in young people with Duchenne muscular dystrophy. Dev Med…
Mental wellbeing in non-ambulant youth with neuromuscular disorders: What makes the difference?
Travlos V, Downs J, Wilson A, Hince D, Patman S. Mental wellbeing in non-ambulant youth with neuromuscular disorders: What makes…
Producing a preference-based quality of life measure for people with Duchenne muscular dystrophy: a mixed-methods study protocol
Powell PA, Carlton J, Rowen D, Brazier JE. Producing a preference-based quality of life measure for people with Duchenne muscular…
Frequency of reported pain in adult males with muscular dystrophy
Jacques MF, Stockley RC, Bostock EI, Smith J, DeGoede CG, Morse CI. Frequency of reported pain in adult males with…
Duchenne muscular dystrophy and caregiver burden: a systematic review
Landfeldt E, Edstrom J, Buccella F, Kirschner J, Lochmuller H. Duchenne muscular dystrophy and caregiver burden: a systematic review. Developmental medicine…
A review of quality of life themes in Duchenne muscular dystrophy for patients and carers
Uttley L, Carlton J, Woods HB, Brazier J. A review of quality of life themes in Duchenne muscular dystrophy for…
Engaging patients and caregivers in prioritizing symptoms impacting quality of life for Duchenne and Becker muscular dystrophy
Hollin IL, Peay H, Fischer R, Janssen EM, Bridges JFP. Engaging patients and caregivers in prioritizing symptoms impacting quality of…
Extending Life in Duchenne Muscular Dystrophy: Implications for Appraisals of Cost-Effectiveness
Landfeldt E. Extending Life in Duchenne Muscular Dystrophy: Implications for Appraisals of Cost-Effectiveness. PharmacoEconomics - open 2019;3:279-280
Cardiac Management of the Patient With Duchenne Muscular Dystrophy
Buddhe S, Cripe L, Friedland-Little J, et al. Cardiac Management of the Patient With Duchenne Muscular Dystrophy. Pediatrics 2018;142:S72-s81 …
Health-related quality of life in patients with Duchenne muscular dystrophy: a multinational, cross-sectional study
Landfeldt E, Lindgren P, Bell CF, et al. Health-related quality of life in patients with Duchenne muscular dystrophy: a multinational,…
