Library

Sobierajska-Rek A, Mański Ł, Jabłońska-Brudło J, Śledzińska K, Ucińska A, Wierzba J. Establishing a telerehabilitation program for patients with Duchenne muscular…

Fujino H, Matsumura T, Saito T, Fujimura H, Imura O. Psychological Case Conference Following the Death of a Patient With…

Janisch M, Boehme K, Thiele S, et al. Tasks and interfaces in primary and specialized palliative care for Duchenne muscular…

MacKintosh EW, Chen ML, Benditt JO. Lifetime Care of Duchenne Muscular Dystrophy. Sleep Med Clin 2020;15:485-495   Abstract Individuals with…

Magliano L, D'Angelo MG, Vita G, et al. Psychological and practical difficulties among parents and healthy siblings of children with…

Peay HL, Meiser B, Kinnett K, Furlong P, Porter K, Tibben A. Mothers' psychological adaptation to Duchenne/Becker muscular dystrophy. Eur…

Abi Daoud MS, Dooley JM, Gordon KE. Depression in parents of children with Duchenne muscular dystrophy. Pediatric neurology  2004;31:16-9  …

Landfeldt E, Lindgren P, Bell CF, et al. Quantifying the burden of caregiving in Duchenne muscular dystrophy. Journal of neurology …

Wall A, Lee GH, Maldonado J, Magnus D. Genetic disease and intellectual disability as contraindications to transplant listing in the…

Schofield C, Evans K, Young H, Paguinto SG, Carroll K, Townsend E, et al. The development of a consensus statement…