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Tasks and interfaces in primary and specialized palliative care for Duchenne muscular dystrophy – A patients’ perspective

Janisch M, Boehme K, Thiele S, et al. Tasks and interfaces in primary and specialized palliative care for Duchenne muscular dystrophy – A patients’ perspective. Neuromuscular Disord 2020   Abstract In spite of the improvements in care and the emergence of disease-modifying treatments, Duchenne muscular dystrophy (DMD) remains a life-limiting disease of adolescence and (young) […]