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Engaging patients and caregivers in prioritizing symptoms impacting quality of life for Duchenne and Becker muscular dystrophy

Hollin IL, Peay H, Fischer R, Janssen EM, Bridges JFP. Engaging patients and caregivers in prioritizing symptoms impacting quality of life for Duchenne and Becker muscular dystrophy. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation¬† 2018;27:2261-2273   Abstract PURPOSE: Patient preference information (PPI) have an […]