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Producing a preference-based quality of life measure for people with Duchenne muscular dystrophy: a mixed-methods study protocol

Powell PA, Carlton J, Rowen D, Brazier JE. Producing a preference-based quality of life measure for people with Duchenne muscular dystrophy: a mixed-methods study protocol. BMJ open 2019;9:e023685   Abstract INTRODUCTION: Preference-based measures (PBMs) of health-related quality of life (HRQoL) are used to generate quality-adjusted life years, which are necessary for cost-effectiveness evaluations of health […]