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The lived experience of hope among parents of a child with Duchenne muscular dystrophy: perceiving the human being beyond the illness

Samson A, Tomiak E, Dimillo J, et al. The lived experience of hope among parents of a child with Duchenne muscular dystrophy: perceiving the human being beyond the illness. Chronic Illn 2009;5:103-14   Abstract OBJECTIVES: Duchenne muscular dystrophy (DMD) is genetically determined, progressive and incurable. Our study’s primary objective was to describe the lived experience […]