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Patient and caregiver perspectives on guideline adherence: the case of endocrine and bone health recommendations for Duchenne muscular dystrophy

Denger B, Kinnett K, Martin A, Grant S, Armstrong C, Khodyakov D. Patient and caregiver perspectives on guideline adherence: the case of endocrine and bone health recommendations for Duchenne muscular dystrophy. Orphanet journal of rare diseases 2019;14:205 Abstract BACKGROUND: Clinical care guidelines are typically developed by clinicians and researchers. Including patient and caregiver voices in […]