Involving patients in reducing decision uncertainties around orphan and ultra-orphan drugs: a rare opportunity?

Menon D, Stafinski T, Dunn A, Short H. Involving patients in reducing decision uncertainties around orphan and ultra-orphan drugs: a rare opportunity? The patient 2015;8:29-39   Abstract INTRODUCTION: Uncertainty influences the amount of risk in decision making, and is typically related to clinical benefit, value for money, affordability, and/or adoption/diffusion of the technology (e.g., drug, […]