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Health-related quality of life and its relation to disease severity in boys with Duchenne muscular dystrophy: satisfied boys, worrying parents–a case-control study.

Houwen-van Opstal SL, Jansen M, van Alfen N, de Groot IJ. Health-related quality of life and its relation to disease severity in boys with Duchenne muscular dystrophy: satisfied boys, worrying parents–a case-control study. Journal of child neurology 2014;29:1486-95   Abstract This study aims to assess the family functioning and health-related quality of life (HRQOL) in […]

World Duchenne
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