Library

Szabo SM, Audhya IF, Malone DC, Feeny D, Gooch KL. Characterizing health state utilities associated with Duchenne muscular dystrophy: a…

Crescimanno G, Greco F, Abbate A, Canino M, Bertini M, Marrone O. Subjective sleep quality in adult patients affected by…

Abrams T, Adkins B. Tragic Affirmation: Disability Beyond Optimism and Pessimism. J Med Humanit 2020   Abstract Tragedy is a…

Fox H, Millington L, Mahabeer I, van Ruiten H. Duchenne muscular dystrophy. BMJ (Clinical research ed.) 2020;368:l7012-l7012   Commentary by Frank…

Bevans KB, Riley AW, Forrest CB. Development of the healthy pathways child-report scales. Quality of life research : an international…

Bevans KB, Riley AW, Moon J, Forrest CB. Conceptual and methodological advances in child-reported outcomes measurement. Expert review of pharmacoeconomics…

Gocheva V, Schmidt S, Orsini AL, et al. Psychosocial adjustment and parental stress in Duchenne Muscular Dystrophy. European journal of…

Hellebrekers DMJ, Lionarons JM, Faber CG, Klinkenberg S, Vles JSH, Hendriksen JGM. Instruments for the Assessment of Behavioral and Psychosocial…

Thille P, Gibson BE, Abrams T, McAdam LC, Mistry B, Setchell J. Enhancing the human dimensions of children's neuromuscular care:…

Gocheva V, Schmidt S, Orsini AL, et al. Association Between Health-Related Quality of Life and Motor Function in Ambulant and…