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Emergency and Capacity Building Program

Initiative by Duchenne Data Foundation And The World Duchenne Organization

In Rare Diseases like Duchenne and Becker Muscular Dystrophy (DMD/BMD), developing strong patient communities plays a fundamental role. Communities are able to act on a local level to have a global impact for the well-being of all the families of people who live with this pathology.

However, local communities are not always equipped with the right tools and opportunities to do so, and are often affected by emergency situations that have a significant impact on the local community.

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First aid directed to Lebanon

This is the case in Lebanon, where the effects of the large explosion at the city port and the Covid-19 pandemic resulted in an emergency situation. Many families need medical equipment to take care of their sons, who suffer from DMD/BMD. For this reason, Duchenne Data Foundation and the World Duchenne Organization decided to set up a support program for local communities that has global supervision through a strategic global capacity building program. The program is starting with the emergency in Lebanon after the Beirut Explosion.