BIND Webinar: Understanding the role of dystrophin in the brain
We are inviting you to join the BIND Patient Community Webinar, taking place on Monday, September 23 at 18:00 CEST. This webinar aims to share the insights and lessons learnt of the BIND project. The BIND project focuses on understanding the role of dystrophin in the brain. It aims to tackle brain comorbidities (learning difficulties and behavioural challenges) faced by people living with Duchenne and Becker muscular dystrophy (DMD and BMD).
The goal of the webinar is to provide attendees with a better understanding of the research findings of the BIND project. Additionally, there will be time to discuss relevant questions from the audience. Speakers include Prof. Francesco Muntoni, Dr Amel Saoudi, Dr Hermien Kan, Dr Jos Hendriksen, and Elizabeth Vroom.
This webinar provides attendees with a unique opportunity to be updated about ongoing research on brain comorbidities in Duchenne and Becker muscular dystrophy.
By attending the webinar, you will:
- Discover the latest findings on the role of dystrophin in the brain;
- Learn how we used advanced MRI scans of the brain to see how DMD/BMD affect the structure and function of the brain;
- Find out about a screener created for evaluating cognitive and behavioural challenges in DMD/BMD;
- Get an overview of the next steps in our research and understand how these developments will benefit the patient community.
A draft agenda can be found below.
| Welcome, introduction | Prof Francesco Muntoni (UCL) |
| What we have learnt from mouse models | Dr Amel Saoudi (CNRS) |
| MRI scans of the brain in DMD and BMD | Dr Hermien Kan (LUMC) |
| Assessing cognitive and behavioural challenges in DMD and BMD | Dr Jos Hendriksen (KEMP) |
| Outcomes & Next steps | Prof Francesco Muntoni |
| Questions & Answers, moderated | Elizabeth Vroom (WDO) |
| End of webinar | Prof Francesco Muntoni (UCL) |
We look forward to welcoming you to this BIND webinar for the patient community.
