1 2 aim

Sections

  • Pages {{ counters.page }}
  • Projects {{ counters.project }}
  • News {{ counters.news }}
  • Library {{ counters.article }}
  • Events {{ counters.event }}

Results


We didn't find what you want. Please try again!

info@worldduchenne.org

  • +31 20 62 750 62

World Duchenne
  • What we do
    • The organization
      • WDO Mission & Vision
      • Strategy
      • Board & Staff
      • Financial Report & Statutes
    • Members
      • WDO Members
      • Benefits
      • Criteria
      • Application
    • Initiatives
      • Accredited Duchenne Centers Program
      • Democratizing access to information
      • DMD Emergency Program
      • Duchenne CAB
      • Duchenne Care Conference
      • Duchenne Patient Academy
      • FAIR Data for Duchenne
      • Scientific Directors Committee
      • World Duchenne Awareness Day
    • EU Projects
      • BEAMER
      • BIND
      • ERDERA
      • EURO-NMD Registry Hub
      • Trials@Home
  • About DMD/BMD
    • The condition
      • What is Duchenne / Becker MD?
      • Early signs of Duchenne and Becker
      • Types & mutations
      • Phases of Duchenne
      • Receiving the diagnosis
    • What you should know
      • Caring for someone with Duchenne
      • Duchenne Carriers
      • Information for clinicians
  • News
    • News
    • Events
  • Care
    • Standards of Care
      • Standards of Care
      • Duchenne Family Guide
      • Becker Family Guide
      • DMD-Care videos
      • Duchenne Adult Care
    • Other care
      • Duchenne Care Conference
      • Nutrition in Duchenne
      • Emergency Cards
      • Psychology of Duchenne
      • BIND-S Screener
    • Useful links
      • dmd-care.org
      • duchennepatientacademy.org
  • Research
    • Preclinical research
      • Introduction
      • Drug discovery
      • Cell models
      • Animal models
    • Therapeutic approaches
      • Therapeutic pipeline overview
      • Gene therapy
      • Mutation specific approaches
      • Cell therapy
      • Drug therapy
    • Joining a clinical trial
      • How clinical trials work
      • Risks and benefits
      • Eligibility criteria and screening
      • Patient safety
  • Advocacy
    • Tools
      • #Resolution4Rare
      • EPF Toolkit on Patient Empowerment
      • EUPATI Toolbox on Medicines R&D
      • Share4Rare Toolkit on Patient Advocacy
    • Training
      • Duchenne Care Conference
      • Duchenne Patient Academy
      • EPF Summer Training Course
      • EUPATI Patient Expert Training Course
      • EURORDIS Open Academy
    • Members
      • European Medicines Agency
      • European Patients Forum
      • EURORDIS
      • Rare Diseases International
  • Library
    • Use of the library
    • Library
  • Donate

World Duchenne Awareness Day

Friends of WDAD

Algeria

ASMNM

Argentina

Asociación Distrofia Muscular para las Enfermedades Neuromusculares

Australia

Fight Duchenne Foundation

Muscular Dystrophy Queensland

Save Our Sons

Belgium

DPP Belgium

Little O against Duchenne

Spierziekten Vlaanderen

Brazil

AACD Pernambuco

Acadim

Aliança Distrofia Brasil (ADB)

OAPD

OBADIN

Canada

Defeat Duchenne

La Force DMD

Muscular Dystrophy Canada

Stand for Duchenne Canada

Chile

DSG-Duchenne

Agrupacion Duchenne Chile

China

China DMD

Colombia

Asociacion Colombiana para la distrofia muscular

Costa Rica

Asociacion De Pacientes Con Distrofias Musculares De Costa Rica

Cyprus

MDA Cyprus

Czech Republic

End Duchenne

Parent Project Czech Republic

Denmark

Muskelsvindfonden

Egypt

Egyptian society of Friends of Genetically Disprivileged Families

France

AFM-Téléthon

Finland

DMD Finland

Lihastautiliitto

Greece

Patients MDA Hellas

India

Dystrophy Annihilation Research Trust

MD India

MDCRC India

Ireland

Duchenne Ireland

Join Our Boys

Muscular Dystrophy Ireland

Israel

Association Duchenne Israel

Little steps

Italy

Abilmente Onlus

Altrodomani Onlus

Centro NeMo (NeuroMuscular Omnicentre)

Duchenne Parent Project Onlus Italia

Fondazione Telethon

UILDM

Kenya

Muscular Dystrophy Society Kenya

Korea

MDA Korea

Lebanon

Land for Hope

Lithuania

Justas Charity Fund

Malaysia

Malaysian Rare Disorders Society

Yayasan Duchenne Selatan

Mexico

Asociación de Distrofia Muscular de Occidente A.C.

Enlace Distrofia Muscular Duchenne Becker, A.C.

SMDM

Netherlands

Duchenne Parent Project the Netherlands

Vereniging Spierziekten Nederland

New Zealand

Muscular Dystrophy New Zealand

Norway

Foreningen for Muskelsyke

Poland

Parent Project MD Poland

Portugal

Associação Portuguesa de Doentes Neuromusculares (APN)

Romania

DMD Care Association

Parent Project Romania

Russia

NPO Duchenne Family

Serbia

DMD Srbija

Singapore

Muscular Dystrophy Association Singapore

Slovakia

OMDVSR

Styria Musketieri

Slovenia

Društvo distrofikov Slovenije

European Alliance of NMD Associations

Spain

Duchenne Parent Project Spain

Duchenne Somriures Valents

Sri Lanka

Parent Project MD Sri Lanka

Sweden

SMDF

DBMD

Switzerland

Progena Foundation

Ukraine

NGO Duchenne Ukraine

Mio Life

United Arab Emirates

Yes2MyGiving initiative

United Kingdom

Action Duchenne

Alex’s Wish

Caring for Connor

DMD Pathfinders

Duchenne Now

Duchenne Research Fund

Duchenne UK

Friends Of Alec Syphas

Harrison’s Fund

Joining Jack

Muscular Dystrophy UK

United States

Coalition Duchenne

Cure Duchenne

Hope for Javier

JB’s Keys to DMD

Michael’s Cause

Muscular Dystrophy Association

Pietro’s Fight

PPMD USA

RaceMD

Ryan’s Quest

The Akari Foundation

The Hope for Gus Foundation

The Jett Foundation

The Zack Heger Foundation

Two Smiles One Hope

WDAD Menu

  • WDAD Home
    • Our story
    • When is World Duchenne Awareness Day?
    • About Duchenne & Becker
    • WDAD News
    • What you can do
    • History of Duchenne
    • Friends of WDAD
    • Diagnosis and Life Expectancy
    • Contact us
    • Conditions of use

Useful Links

  • Contact
  • Privacy & Cookie statement
  • Terms & Conditions

News

  • Road to independence: Documentary about young people with NMD

    November 11, 2024

  • Webinar Recording: Understanding the role of dystrophin in the brain in DMD/BMD

    November 6, 2024

  • Applications now open for Duchenne Patient Academy 2024

    October 30, 2024

Newsletter

Subscribe to our newsletter and receive updates on developments in Duchenne & Becker, news and stories, curated by the WDO.

European Neuromuscular Centre (ENMC)

Copyright World Duchenne Organization © 2024

We are using cookies to give you the best experience on our website.

You can find out more about which cookies we are using or switch them off in .

World Duchenne
Powered by  GDPR Cookie Compliance
Privacy Overview

This website uses cookies so that we can provide you with the best user experience possible. Cookie information is stored in your browser and performs functions such as recognising you when you return to our website and helping our team to understand which sections of the website you find most interesting and useful.

Strictly Necessary Cookies

Strictly Necessary Cookie should be enabled at all times so that we can save your preferences for cookie settings.