September 7 is World Duchenne Awareness Day. On this day, we raise awareness for Duchenne and Becker Muscular Dystrophy (DMD/BMD) around the globe. As every year, we have a special theme that deserves more attention. This year it will be ‘Adult Life & Duchenne’.
Adult Life & Duchenne
Over the past decades, life expectancy of individuals affected by Duchenne MD has increased significantly. Adults with Duchenne are not an exception anymore. Adult life with Duchenne comes with new challenges and opportunities as well as with new medical issues. This World Duchenne Awareness Day, we are globally advocating for young adults and adults with Duchenne to live their lives to the fullest.
World Duchenne Organization
On September 7, the World Duchenne Organization will be hosting an online event. During this event, experts share their stories and experiences surrounding DMD/BMD and adult life. With this we aim to inspire and empower young adults with Duchenne and their families to think and plan for the future.