Whether you or your family have been in a clinical trial or not, we would like to know your thoughts on the importance of accessing clinical trial data to patients and their families after a trial has been completed. VISION-DMD, in collaboration with World Duchenne Organization, invite you to participate in this short survey gathering opinions on returning clinical trial data to patients.
Link to survey: https://s.surveyplanet.com/tufgr4dv
The deadline for completing this survey is 17th November 2021
The results of this survey will help to develop an understanding of the importance of data return to patients. Next to this, it will support work towards a gold standard for data return, and facilitate the development of guidelines that can be easily incorporated into clinical trial design for the ethical return of individual patient data.
If you would like to find out more about the return of patient data, read VISON-DMD’s latest publication on Returning individual clinical trial data back to participants.
Or visit the website at https://vision-dmd.info/return-of-patient-data/