Caring for people with Duchenne, Becker and other MD’s during COVID-19
COVID-19 has shaken up the healthcare world. Delivering clinical care to people affected with Duchenne, Becker and other muscular dystrophies becomes more and more challenging. The impact that this pandemic has on the care of DMD and BMD has yet to be defined, as there is a chance they have a higher risk of being more seriously affected by the virus.
Abstract
In this publication, authors discuss recommendations considering the care of this patient group. The following topics are addressed:
- Corticosteroid and exon skipping treatments
- Cardiac medications
- Hydroxychloroquine use
- Emergency and respiratory care
- Rehabilitation management
- Conducting clinical trials
In short, this paper highlights the importance of collaboration between the patient, family and health care providers, regardless where the patient lives or which measurements are taken by local institutions on COVID-19. The authors advocate for continuing multidisciplinary care for those affected using an approach called ‘Telehealth’.
More information about DMD/BMD and COVID-19
In line with this publication, the World Duchenne Organization published a series of webinars concerning COVID-19. In here, experts on the condition discuss the most frequently asked questions around DMD/BMD and COVID-19. We bring topics to the table:
- What happens in case of a COVID-19 infection?
- Are there any supplements or vitamins to take that help decrease the risk of getting infected?
- Do I have to make any changes in my steroid or medication regimen?
- How can I prepare for a possible DMD/BMD patient with COVID-19?
- How do I manage COVID-19 induced stress and anxiety?
