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EURORDIS Black Pearl Awards 2022

The eleventh edition of the EURORDIS Black Pearl Awards will take place online on Tuesday February 8, 2022. It will bring together people living with a rare disease, and other stakeholders. Nominations are now open and can be submitted from anywhere in the world.

Award categories

Everyone can nominate their star of the rare disease community, or enter themselves, for one of the EURORDIS Black Pearl Awards 2022. The 12 award categories recognise the outstanding efforts of people living or working in the field of rare diseases, who are working to improve the lives of the 30 million people in Europe and 300 million worldwide living with a rare disease.

Selection process

Among all the nominations received, the EURORDIS Board of Directors will select the awardees in October 2021. EURORDIS has partnered with Orphanet for the evaluation of the Scientific Award nominations and with Medtech Europe for the Company Award for Health Technology.

A few finalists will be selected for the Young Patient Advocate Award and the Social Media Award, for which the winners will be determined by a public vote. The awardees will be presented with their awards at the official Ceremony next February, to mark the occasion of Rare Disease Day.


Read more about the categories below and click to make your nomination in just a few minutes.
See the previous awardees for inspiration. In 2020, Prof Annemieke Aartsma-Rus received the Black Pearl Award with her achievements and dedication in the field of Duchenne Muscular Dystrophy.
Nominations deadline: 10th September 2021.


Any questions regarding the nomination process? Do not hesitate to contact Martina Bergna, EURORDIS Events Manager, at [email protected].