Dr Imelda de Groot award for improving care in Duchenne

The ‘Dr Imelda de Groot’ is an award meant to stimulate people to improve care for persons with Duchenne muscular dystrophy (DMD). Especially innovative projects are of interest. This award is an initiative of the foundation Duchenne Parent Project, The Netherlands. The deadline for submitting an application is May 1, 2023. The winner receives € 10.000 to be spend on this type of research.

Every professional involved in the care of persons with DMD can apply for the award. Support of the patients’ organization is advisable for the application.

Initiatives can be:

• Implementation of new scientific findings in usual care
• Exploration of the effect of new care treatments (pilot study)
• New sport initiatives
• New leisure initiatives
• Care initiatives to improve social participation
• Exploring new topics raised in care clinic

The award is a support to start or to further unroll a project.

About the award

Dr Imelda de Groot retired in April 2021 as a pediatric rehabilitation specialist at the Radboud University Medical Center. During her career she initiated innovative and relevant research projects in the field of Duchenne and Becker Muscular Dystrophy, such as ‘No use is disuse’ about exercise and physical activities, outcome measures and many other subjects. The goal of the award is to stimulate researchers and clinicians to develop activities in this field.

Announcing winner

The winner of the award, selected by a jury existing of experts including patients, will receive € 10.000 to be spend on this type of research. In 2021, this prize was awarded for the first time to Project Maku.

Deadline for nominations: May 1, 2023.

The winner of the Dr Imelda de Groot award will be announced on June 30, 2023.

Nominations can be send to [email protected] and should include:

• Name and contact details of nominee
• Nominees employer: institution/company or other
• Recommended: letter of recommendation of the patient organization
• Relationship between the patient organization and the nominee

 

Application:
Video with description of the project and the motivation why this project deserves to win this award. Video can be in native language but should then be subtitled in English. Max 3 minutes.