Just diagnosed
You just have received the diagnosis Duchenne or Becker muscular dystrophy. The worlds seems to stop turning for a moment. Becoming a Duchenne or Becker parent is a challenge and a new chapter for anyone, no matter what the circumstances. There are so many new things to learn, experience, get the hang of and deal with.
Fortunately, there are many tools available that help you cope with this. Below are a few resources listed that include information about DMD/BMD and how take care of your child, your family and yourself.
By understanding the course of the disease, you will better understand and anticipate on the challenges it might bring. This will give you a sense of control to push forward, and get your child the best care as possible.
Helpful resources
“Receiving the diagnosis DMD doesn’t take away your right to take action and have hope. There is a positive way to transform bad news into an effort to create a strong community”
“It’s essential that the community has a strong, unified voice to raise awareness for Duchenne and Becker muscular dystrophy. Only then we can create noise and move forwards”
More information?
Implementing the latest Standards of Care
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