EURORDIS Open Academy

Patients are experts on their diseases and have a valuable contribution to make to shaping meaningful rare disease research, policies and services.

By providing training, EURORDIS empowers patients and ensures they have the confidence and knowledge needed to bring their expertise to discussions on health care, research and medicines development with policy makers, industry and scientists.

EURORDIS also provides the link between training alumni and organisations such as the European Medicines Agency (EMA), where trained patients actively engage in many activities including scientific advice.

EURODIS Open Academy

• Digital School
• Leadership School
• Summer School
• Winter School