Emergencies happen to everyone. If you have one and need to go to the emergency room, there are things that people with Duchenne need to do. The most important is to take your emergency card with you. This will let you and the emergency room staff know what to look out for.
Watch what to do in case of an emergency
Below you can find a checklist and translations of these emergency cards in multiple languages. If your language is not there and you want to translate them, please contact us.
If you have a fracture, or a bump that could maybe cause a fracture, you should watch out for signs of Fat Embolism Syndrome or FES. These include difficulty breathing, pain in your chest or head and a change in your behavior, like confusion, dizziness or not acting like yourself. If any of these signs are noticed, go IMMEDIATELY to the emergency room. This is an EMERGENCY. Take information from the internet about FES and tell the medical staff that you suspect FES.
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