WDO Webinar 6: Duchenne & Vaccines

During the WDO Member Meeting on February 28, the World Duchenne Organization invited Dr. Erik Niks to present a webinar about Duchenne Muscular Dystrophy in relation to the COVID-19 vaccines. Dr. Niks is a pediatric and adult neurologist in Leiden University medical Center (NL). He discusses questions often received from both families and clinicians, and proposes guidance on getting your vaccination when you’re on medications and steroids.

Important notice: Changes in your steroid regimen should always be discussed with the one prescribing it, which is often a clinician.

Click here to access the Duchenne & Vaccines report in English.

Translations

• Polish: Dystrofia Duchenne’a a szczepienie p/COVID
• Greek: Διαδικτυακό σεμινάριο 6- Duchenne Μυϊκή Δυστροφία και τα εμβόλια για τον Covid-19

Subtitles available in Arabic, French, Polish, Russian and Spanish.

Adapting scheme for 8-10 days on/off steroids

Questions discussed:

1. What is the best way to prevent a COVID infection?
2. Why is a COVID infection so dangerous?
3. How do most COVID vaccines work?
4. Why is there an age limitation on the vaccination?
5. How can the vaccine trigger an immune response?
6. Do people with Duchenne have a bigger risk to get COVID?
7. Are the vaccines safe for people with Duchenne?
8. Does the vaccine interfere with other DMD medication?
9. Which COVID vaccine is best for people with Duchenne?
10. Is being on steroid a reason to not get vaccinated?
11. Is it smart to decline my vaccine appointment?
12. Do I change my scheme when I’m on 10 days on, 10 days off steroids?
13. Do I change my scheme when I’m on daily or daily alternating steroids?
14. If I get the vaccine, will I be able to join clinical trials?