ONLINE EVENT: ADULT LIFE & DUCHENNE

On 7 September 2021, the World Duchenne Organization hosted an online event on Adult Life & Duchenne. The event gathered people from over 50 countries to listen to stories and experiences surrounding DMD and adult life. The World Duchenne Awareness Day 2021 event ‘Adult Life & Duchenne’ is available with Spanish, Russian and Ukrainian interpretation.

For more information, visit the World Duchenne Awareness Day website.

Speakers

• Elizabeth Vroom: Opportunities and challenges in Adult Life & Duchenne
• Interview: Eilan Golan from Israel
• Prof Ros Quinlivan: Guidelines on Duchenne Adult Care
• Interview: Jacopo Verardo from Italy
• Nicoletta Madia: Insights from the Social Duchenne project
• Dr Jos Hendriksen: Psychosocial aspects of Adult Life & Duchenne
• Pedro Martinez from Brazil
• Hlawulani Mkhabela: Resolution4Rare
• Adith Thummalapalli from the United States
• Elizabeth Vroom: What patient organizations can do
• Interview: Suzanne Glover from Pathfinders Alliance
• Audience Q&A